Vol. VI, Spring 1990Vol. VIII, Spring 1992

Grey, White, and Black   Navneet K. Singha
Red Snail Days   Peter Bulow
The Boy with Chitin Skin   Peter Bulow
Seizures   Carolyn Alessio
Caring   Margaret Hasenberg
Shelly   Mary L. Anthony
The Basic Question   Jim Black
The Pink Hair Ribbon   Julie Pease
Code   Steven Kroft
Cold Whispers   Marisela Dominguez
Buddies For Life   Peter R. Curio
Dementia #3   Daniel J. Brauner
Prayer #3   Daniel J. Brauner
untitled   S. David Lo
untitled   Christopher Vittore
Why Bother?   Jim Black
Vision Impaired   Feiruz Shehadi
In the Beginning   Feiruz Shehadi
Acknowledgements

Grey, White, and Black
(after William Carlos Williams)

Navneet K. Singha
College of Medicine, UIC
Class of 1993

Red Snail Days

Peter Bulow
College of Medicine, UI-UC
Medical Scholars Program

The Boy With Chitin Skin

Peter Bulow
College of Medicine, UI-UC
Medical Scholars Program

Seizures

Jake was having a seizure when I met him. His thin, seven- year-old limbs waved taut, slapping the floral couch his mother had upholstered before leaving the family. "He'll be okay in a minute," his father, Richard, said to me from where we sat in wicker chairs. Richard went on with the interview—Had I ever cared for a handicapped child before? One who couldn't talk?—but I was watching Jake's eyes. Both his dark pupils were swung toward the right side of his head, as though straining to retreat back into their orbitals.
I wanted to move over to Jake, to stroke his forehead and smooth the bunched skin on his cheeks, but his father was still talking. "Jake's mother left the house in a mess," Richard said, gesturing toward the room, but I only saw polished cherrywood tables and a smooth, melon-colored carpet. The sole disturbances in the room's composure were, scattered around Jake, a ball of crumpled newspaper, a kitchen sponge, and a woman's patent leather shoe.
" So we'll need some help with the cleaning, too." Richard stood up and moved across the room to Jake, who was slowly sitting up, pulling his body into a hunched form. His small eyes looked straight ahead now, but still they did not seem to focus on anything—or anyone—around him. "There you go, buddy," Richard said, as Jake began to grope, silently, for the ball of crumpled newspaper.
"See, Sharon?" Richard said as I stood up slowly. "See how fast the seizure ended?"

The night after my interview, I dreamed of Richard's and Jake's limestone house. From the sidewalk, the front porch lights burned orange and attracted me through the darkness, but once inside the home, it was dim and damp. Instead of turning toward the living room—the only area I had seen during the interview—I crossed the hall and moved slowly toward the staircase. I tried to move faster, but my legs were thin and weak. The carpeting on the stairs was thick; its pile cushioned my step. At the top, I turned left as though I were following exact directions, and continued down a hall. As I moved, my limbs became more frail and unsteady. At the end of the hallway, I reached a creme-colored door. I groped for a doorknob, but couldn't find one; my hand slid across the smooth panels, pressing in vain for some sort of fixture.

Richard was overt about why he hired me over the three other young women he interviewed: my bachelor's degree was from the same state university as his. "I saw where you graduated from, Sharon." He motioned toward my scanty resume. I had typed it on letterhead of the temp agency where I worked since graduating two months before. "And I just knew," Richard said, "you'd be a good influence on us around here."
I think Richard pictured the two of us chanting university cheers in the kitchen every morning, and swapping predictions about the sports teams. "There—look," he would say, stabbing at the college sports statistics in the newspaper. Jake would shuffle around behind us, waiting to clamp onto the newspaper for his own purpose of crumpling it endlessly between his small, grimy hands.
My enthusiasm for my alma mater, though, was tepid in comparison to Richard's. His degree in business eventually propelled him to a glass company which specialized in security windows. The sports car he drove had tinted security windows.
My degree was in a murky, less lucrative area—psychology. I had been nonplused by the lectures in packed classrooms. originally, I did not even plan on majoring in psychology; my first two years of college I was pre-med. I though that knowing things like the five sections of the spinal cord would teach me how to cure people, or at least how to care for them. I studied anatomy, organic chemistry and physics constantly, so much that I began to neglect other vital operations, like eating.
A counselor at The Willows, the center where I recuperated that summer, suggested that I switch to studying psychology. "Look, Sharon," she said, running her pen along the spiral ring of her case notebook, "you want to pick a subject that's less demanding, but that'll still use some of your finished course work." As the ballpoint clicked along the metal ribs of the spiral, I thought, cervical—seven vertebrae, thoracic—twelve vertebrae, and so on. "Will I still be able to graduate," I said, trying to remember if there were five or seven vertebrae in the sacral section, "in four years?"

When I saw Richard's newspaper ad: "Childcare needed for boy with seizure disorder. Light cleaning," I imagined wiping up a toddler's drool after he suffered a gran mal seizure. I saw myself in the kitchen, calm and resourceful, grabbing a dishtowel or sponge for the task.
My first morning at work, Jake was sitting on the kitchen floor, sucking on a large yellow sponge. "Hi, Jake," I said, but he remained hunched over, silently intent on his toy. I knelt down next to him. His small hands gripped the sponge, his fingers stuffed into its wide pores.
I looked over at Richard, who was calmly shaking coffee grounds out of a soggy filter. "Jake thinks the sponge has water in it. He gets pretty thirsty from his Depakene syrup. It's one of his anticonvulsants—l' Richard dumped the damp, dark grounds into the garbage compactor and moved over to a cabinet above the countertop. "I keep all of Jake's medicine in here. He takes it after every meal—at least it cuts down on the seizures."
I looked at the tall, orange vials and wondered how I would cajole a boy who could not talk or even focus on me, into swallowing thick syrups and pills. "How much medication do I give him?" I said.
"I've marked down all the dosages," Richard said, "but if you happen to give him too much, don't sweat it. Karen—his mother—
and I would sometimes both give it to him, without knowing the other did. All that'll happen is that he'll get real sleepy for about an hour and not even want to play or eat."
Next to me, Jake still clutched the sponge—periodically chewing on a corner—but now he was also rocking slowly back and forth. I tried to picture him motionless, sleeping off an accidental overdose, but I thought of myself, instead: hunched over on the bed in my dorm room, too weak from missed meals to review my biology notes.
"What does Jake eat for breakfast?" I said to Richard. He was pouring coffee into a mug embossed with the company slogan: "Shatterproof Dreams with Samuels Security Glass."
"We'll do all that now," Richard said, "before I've got to rush to work." He set down his mug and moved over to Jake. "Let's go, buddy," Richard said, bending down and prying the sponge from Jake's grimy hands. Jake grabbed for it, but Richard was pulling him up by his thin shoulders.
As I watched them—the deliberate, dark-haired father leading his unwieldy blond son—I wondered about Jake's mother. Karen, Richard had said. Was she so firm with her son, or maybe not enough? Was her hair blonde? I looked around the kitchen for some evidence of her, trying to detect meaning in the antique-blue walls, the African violets lining the windowsill, the oven mitts shaped like lobsters; their quilted claws reaching.
"That was the hard part," Richard said. Jake was installed in his chair at the end of the table. He squirmed under Richard's clamp.
"Okay," I hesitated. Was there a next step I should already know? I felt as though I were back in my college dorm's cafeteria, pushing my plastic tray along the metal counter, and marvelling at the speed and ease with which people around me chose their entrees. Once when I ate lunch with Todd, my physics lab partner, I was so worried that he would notice my indecisiveness that I grabbed two entrees—macaroni and cheese and a pizza burger. At the table, though, Todd laughed. "Hey, Shar, you training for football?" he said. I should have made some quip, or maybe smiled into his blue-green eyes, but instead I returned to the serving line and selected a new dinner: a chef's salad. "Aren't you going to put dressing on that?" Todd said, before changing the subject back to lab, and our experiment on projectile motion.
"Right, Sharon, now go to the freezer and get out some frozen waffles and sausages," Richard was saying. "I just pop it all in the microwave." He released his grip on Jake, who surprised me by remaining in his chair, still for a moment. "Jake loves his breakfast food, don't you buddy?"
Breakfast food? The term sounded so generic, like "foodstuff"; not an actual dish that Jake could taste and maybe even savor. I opened the freezer, and groped around in the frosty lumps.
My movement must have been too slow—and unsure—because Richard soon joined me at the freezer, reaching around me. "Look, it's simple," he said, pulling out two frozen slices of French toast and a handful of smokey links. He dumped them into a purple bowl on the countertop.
Behind him, Jake was bent forward, licking the table. For a moment I thought he was having a seizure, but his arms lay flat and smooth on the table, and underneath, his legs were swinging evenly.
"Jake looks hungry," I said.
"Just hold on another minute, buddy," Richard said, without turning around. He handed me the bowl. "Now you just have to microwave this, and set it down in front of Jake. He'll take it from there," Richard said, winking. He pushed up the sleeve of his sweatshirt, and consulted his electronic watch. "Now I've gotta run upstairs and get cleaned up. Yell if you need anything."
"Right," I said, staring at the bowl's contents: French toast in hard, brown-flecked squares, slick with preservatives. I looked over at Jake, who was still licking the table, and wondered if his mother had served him these same foods. Maybe some morning after Richard left for work, I would scramble some eggs for Jake or cook him some bacon. This could all be done in the microwave, I knew from the recipes on easy cuisine that my mother frequently sent me.
As Richard exited the kitchen— he left the door slightly ajar— I open the microwave and slid in Jake's breakfast. "I'm coming, Jake," I said, shutting the door and programming the microwave to cook on High.

"He's not exactly retarded," I told my mother over the phone. Her call awakened me even though it was only 9 p.m.; my arms and back ached from bathing Jake and vacuuming, and I had gone to bed after eating a tuna melt and cooked carrots.
"Sharon, I've never heard of epilepsy so bad that someone couldn't talk. Does the little boy have many gran mals?" She pronounced it "grahnd malls," as though referring to one of the large shopping centers dotting the neighborhood where she and my stepfather lived.
Jake's seizures probably damaged the left hemisphere of his brain, I wanted to tell my mother, where all language originates. I was afraid, though, that she might think I was studying biology and anatomy again; "burning the candle at both ends," as she had told me often during college. "Do the other girls there study so much?" she used to asked me, and I would answer honestly: "I don't know, Mom."
"Jake's sweet, Mom," I said. "I made him breakfast this morning. Then Richard, his father, showed me how to give him a bath. Jake kept trying to drink from the faucet—he put his mouth right up to it."
"Did you eat breakfast?" my mother said. I knew I should not have mentioned food, even in passing.
"Yes." A cup of raspberry yogurt, a slice of oatbran toast and orange juice, but I wasn't going to specify for my mother. Since my summer at The Willows, my mother constantly asked for my daily menus, in detailed courses. I had told her that I still followed the recommended meal plan from the center—it was stuck to my refrigerator with a magnet shaped like a chocolate kiss—and when she visited she surely saw that I was not emaciated. But still, my mother seemed to doubt my nurturing abilities.
"Marty and I wish you'd come home and live with us," she said. "You could find a decent job around here, Sharon." I imagined myself back in an office cubicle, wearing a stenographer's headset. "I know Mom, but I want to work with Jake," I said, twisting a coil of phone cord around my index finger. It's what I've trained for, I wanted to say.

In the mornings, we first tackled the toilet. "Jake sits down to pee," Richard had told me. "It's the only way he'll go." Once I coaxed Jake onto the toilet for the first time, though, I wished Richard had given me further instructions. in front of me, Jake sat hunched on the beige toilet, his pajama bottoms bunched down around his calves. He stared down at the tiled floor, on which was perched that morning's favorite toy—a man's leather belt with a buckle shaped like an 'R.'
Jake was clearly more concerned with the belt than urinating. Three times he lunged for it. Finally I grabbed the belt and stuffed it under the sink, next to a basket of bath toys which Jake had rejected long ago, according to Richard. "Now let's go, Jake," I said, pressing gently on his knees, to hold him on the toilet. His dark eyes moved past me, and over to the sink. He ran his tongue along his dry lower lip.
I stared at the sink, too, and remembered an old device of my mother's. Whenever I could not, or maybe—would not—urinate, she would turn on the sink faucet, and run the water just strong enough that I could hear the low, thick stream.
With one hand still bracing Jake's knees, I reached to the sink and pulled the smooth, brass handle crowned with a cursive oc.1 As water streamed into the basin, Jake craned his head further toward the sink, and the shining faucet. After a few moments, when I was doubting my strategy, Jake slowly turned his head, passing his gaze over me, and stared down at his own body. With his head tucked and his chapped lips clamped, he began to urinate.

Three mornings a week, Jake was bussed to a school for developmentally handicapped children. "Jake's special school," Richard called the center, as though Jake were a member of an elite health club, replete with saunas and weight-lifting equipment. I never saw Jake's school—I just shepherded him out to the bus, making sure his backpack didn't slide off his thin shoulders—but whenever Richard mentioned it, I imagined the center where I stayed for three months during college. The founders probably christened it "The Willows" to give the impression of a serene, natural retreat. After three months there, though, I had a different association: I thought of the other young women in my therapy group, and their lithe, pale figures swaying around me as they leaned in toward the center of the circle to hear the counselor's low-toned advice.
When I asked Richard more about Jake's school, he was vague. "Karen hooked him up with the program about four years ago," he said, leaning against the dishwasher. "Frankly, I haven't seen much change in him, but now it's just part of his routine. Can't hurt, I guess."
"What do they teach him?" I imagined Jake seated in a crowded classroom, ignoring the teacher and other students to play with an eraser he found on the floor.
"Oh, they stress some basic communication skills," Richard said, "like getting him to show the things he wants, by pointing at this picture board. It's not exactly like learning sign language— you and I both know Jake wouldn't sit still long enough for that."
I was afraid Richard would grin or wink, so I looked away, over at Jake's chair. Its back panel of wicker caning was worn through and ripped in several places. I thought of the only chair at my kitchen table. It was a stool which was too high to eat or read on the table without hunching forward. It had been inexpensive, though, at a local garage sale, and I liked the grooves worn into its oak seat. I compensated for its awkward height by always setting my plate or book on my lap.
Richard's voice continued; steady and nasal. "Mainly Jake's school tries to get him to use some pretty simple games and tools. Jake's mother bought into all that stuff—we've still got some equipment in the basement, but it was pretty frustrating to try and get Jake to use it at home." Richard glanced at his wristwatch. "I mean, Sharon, can you imagine Jake with cooked hot dogs sitting in front of him, and not letting him eat until he points at a picture of food?"
I looked over Richard's head, this time into the dark, safe door of the microwave.

I found Jake's picture board in the basement, on a shelf above the washer and dryer. Jake had wet his bed the night before, and I was waiting for his sheets to finish tumbling dry. The board looked homemade; lines cut from black felt divided it into nine squares. In each was a crayon drawing outlined in black marker: a glass of milk; a toilet, a sweatshirt in the colors of the University Richard and I graduated from. In the center was a close-up photograph of Jake's face. His hair was lighter and his adult teeth had not all grown in yet, but the most significant difference was in his eyes—the small, brown pupils looked ahead as though they were focusing on something or someone important. In the dim basement, I stared at the board and imagined a blonde woman holding it out to Jake, who sat next to her.
"Now where are you on this board?" she might say softly, leaning forward and curving her arm around her son's shoulders. "Where's my boy?"
From upstairs I heard Richard's low but strident voice. He probably forgot something for work, I decided, or came home for an early lunch. Carefully I set the board back on the shelf.
With an armful of warn sheets, I slowly climbed the stairs. I paused at the entrance to the living room. Richard was lying on the floral couch, his head resting on the lap of a woman wearing a suede miniskirt and scoop-neck sweater. Her whitish blond hair was dark at the roots in a zig-zag pattern down her part. Both she and Richard were eating French fries from a greasy paper bag on the carpet. I would vacuum, I decided, as soon as they left.
"Sharon, hi," Richard said, sitting up. "This is Sherri, a woman I work with. Sherri Carlson, this is Sharon, our new helper around here. Sharon went to the U., also."
Sherri. When I was a child my mother briefly tried this nickname, but privately it made me seethe. I had been tall for my age, a status which ceased to impress my male classmates by the end of grade school. I think my mother called me "Sherry" in an attempt to comfort and convince me that I was quite literally still her baby, but in practice, the diminutive made me feel mocked.
"Hey," Sherri said. "French fry?" She held one out between her long, smooth fingernails.
I shook my head—I had brought an egg salad sandwich and nectarine for lunch. Wrapped neatly in foil, they were cooling in the refrigerator between a package of bratwurst and a tub of cream cheese.
Sherri shrugged. "No wonder you're so skinny," she said, lifting the limp fry up to her mouth.
I shifted the sheets in my arms and glanced down at my waist. I wondered what Sherri would have thought of me when I couldn't wear my jeans without a thick belt. "Now that's just gross," she might said, or "You're carrying it too far," like some of the women in my dormitory had commented. The remark that had bothered me most, though, was from my aunt Patsy who came to visit me at The Willows: "Sometimes, honey," she had said, patting her thick, full midriff, "I wish I could be anorexic for a week or two." When I later told this to my mother, she said, "Patsy didn't know how to deal with the situation, honey. How could she? She I s not a professional." A professional what, I had wondered.
"Sharon, did Jake get off to school all right?" Richard said.
"Yeah, but on the way out to the bus, I had to keep pulling the rubber spatula away from him," I said, making a tugging motion with one of my hands. "He wanted to take it to school. it actually looked kind of fun to play with."
Richard smiled, but he didn't laugh as he often did at my reports of Jake's antics. Sometimes he even told me stories about Jake when he was a toddler, like the time he lay down on a playground, trying to drink from a mud puddle. "Just like a little piggy," Richard had said, chuckling. But now, next to Sherri, he seemed uneasy.
"Jake should be home in about an hour," I said.
Richard reached for a French fry, brushing against Sherri's plump calf. "We'll probably be back at work then."
"Yeah," Sherri said, licking ketchup from her thumb. "We've just got time for an ole' H.I. lunch right now."
"'High lunch?'" I said, thinking of "high tea" from British movies I had seen with my mother.
"Sharon," Richard said quickly, "you're sure you don't want some fries?"
"An H.I. lunch," Sherri said, grinning. "Holiday Inn."
I went back down to the basement and folded the sheets, smoothing even the fitted corners. After Richard and Sherri left, I sat out on the porch and ate my nectarine while I waited for Jake's bus.

One morning near the end of my first month, I was helping Jake out of the bathtub when his slippery body became rigid and still. His eyes turned toward the sides of his head, and his body slumped. Just before he collapsed onto the cold tile, I managed to hook my arm underneath his neck and head. I yelled for Richard, even though I was pretty sure that he and Sherri, who often stayed overnight, had already left for work.
Jake's head shook and his body twisted from side to side. Richard had told me about these extreme seizures, but that morning I knew I wasn't ready. "It's okay Jake you're fine it's almost over now, " I murmured, throwing the towel over his shuddering body.
"He okay?" Sherri stood in the doorway, in a lacy bra and bikini underpants. "I was running late and Richard went ahead to work. I heard you yell all the way down the hall."
I just nodded; my throat was too tight and dry to talk. Next to me, Jake's convulsions had stopped and his head was still, but his small eyes were dilated and moist.

"I'll pay you two hundred and fifty dollars," Richard told me at the end of my sixth week, "to watch Jake for the weekend. " Sherri had never visited the campus of our alma mater, and Richard had football tickets for that Saturday's game. The University was not a long drive, but it made sense to Richard to stay there overnight. "I would take you, buddy," Richard said, reaching out to touch Jake, who was circling the kitchen while he crumpled newspaper. "But it might get too hectic."
"I don't know," I said, reaching down to pick up an ad insert that had slipped out of Jake's clutch. I knew now not to bring things over to him, so I waited there, by the table until he edged toward me. I held out the ad casually and turned my head the other way, toward the kitchen window. As I looked out at the driveway and the tinted windows of Richard's car, Jake pulled the ad from my hand, his bony elbow brushing my hip. I didn't turn back until he had moved away, walking in his halted circles and vigorously crumpling the ad.
The trick with Jake, I had learned, was not to look into his eyes. He showed me this one morning when I was trying to give him medicine. I held him on my lap as Richard did, with my arm around his waist. Gently I tilted back his neck and brought the spoon up to his mouth. This process had seemed to work well for Richard, but Jake rejected my technique. When I learned forward, smiling, and raised the spoon to Jake's lips, he jerked his head away, butting the spoon with his head. He splashed bright red syrup over both of us.
As I cleaned him up with a damp paper towel, I tasted the medicine. It was thick and sour in my mouth. I quickly wiped the taste off my tongue, wishing I could do the same for Jake after every heavy dose.

I didn't tell my mother that I was spending the weekend with Jake. She would protest, I knew, and accuse me of "running myself down." Whenever she said this I imagined myself sprinting down a dark hall, chasing someone who looked exactly like me. I might have told my mother that I needed the money for groceries and cooking supplies, or the truth—that my weekends were lonely. Sometimes I went shopping with a woman who lived with her husband beneath me. I always accepted Marita's invitations, even if I had to invent errands. The last time we went to the mall, Marita wanted to price leotards for the jazz dancing class she had been urging me to join. I was more interested, though, in the educational toy store. It was lined with rows of flexible brightly colored toys with elastic joints and small bells. I imagined Jake batting them around the kitchen or living room. When I showed Marita the toys, she said, "These are expensive, Sharon. Isn't the little boy just as happy playing with that household stuff you told me about?" I fingered a ball covered with small, silver bells. "Come on," she said, "I want your opinion—do you think I should go with the unitard or a regular leotard and tights?"
On the phone, I knew that if I mentioned the emptiness of my weekends to my mother she would offer to drive up with my stepfather and cook rich meals that would cloud my studio apartment with thick, spicy vapors.

If the phone rings, just let the machine pick it up," Richard said before he left for the weekend. "Lately I've been getting harassing phone calls at night." I wanted to question him, but I was trying to block Jake from following his father out to the car. "We'll have fun at home, Jake," I said, standing in between him and the screen door.
Jake was restless that morning and afternoon. I tried to interest him in a ream of newspaper, but he ignored it, walking haltingly around the room. He followed me only into the kitchen, where he stood in front of the sink and licked the rim until I filled his plastic cup with water.
For supper I decided to poach eggs. If they turned out right—smooth and firm—I would make cheddar-cheese-and-egg sandwiches, an invention of my mother's. As I picked out the cool eggs from the refrigerator and filled the pan with warm water, Jake was sitting on the kitchen floor, repeatedly spinning his red plastic cup.
The water had just begun to boil in slow, wide bubbles when the telephone rang. I clicked off the gas and was pushing the scalding pot far back on the stove—to where Jake couldn't reach it—when the answering machine switched on. "This is Richard Samuels and I'm unavailable right now," the low voice intoned. On the floor, Jake was still spinning his cup. "Please leave a message at the sound and I'll get back to you..."
"Richard?" said a soft, thick voice. A female voice. "Richard, please pick up."
On the floor, Jake looked up from his cup.
"I've been thinking about a lot," the voice said, "and we need to talk. Mom even had some good ideas about everything ... She said she'd watch Jake while you and I got away to talk ... Richard, please call me here."
I moved toward the phone. I touched the smooth, slick receiver. From the floor, Jake was still looking toward the phone—and me. I picked up the receiver, but the caller had just hung up.
I finished poaching the eggs, but they were disappointing; the albumin floated in thin white veils through the boiling water. From his purple bowl, Jake ate one-half of an egg and smeared the rest on the table in yellow and white streaks. on my stoneware plate, I punctured the yolk with my fork before abandoning the meal. As I wiped off Jake and the table, I heard the caller's voice: "We need to talk." By hesitating to pick up, had I thwarted a reconciliation? Richard would get the message when he returned, I knew, but by then, everything might have changed.
Jake wriggled, and grabbed at the damp dish towel. I let him take it from me, and he promptly stuffed it into his mouth. I imagined the comfort he felt then; the warm, moist towel filling the empty crevices of his mouth.

Richard called from his hotel room when I was tucking in Jake. After reporting on the final score of the football game and the campus bars he and Sherri visited, he said, "Everything okay there? Any calls?"
I turned away from the phone. "Jake, get back in bed, " I said. My empty stomach was beginning to ache.
"Is he giving you a hard time there?" In the background I heard Sherri's strident voice: "Come on, Richard."
"No, we're all fine here." When I hung up I pulled Jake's comforter over his wriggling body. "Come on now, Jake." I pressed gently on his shoulder. "Let's get some sleep." My stomach felt taut and wide.
Jake squirmed for a few moments, then turned his head and began to rub it vigorously against the pillow. He did this for quite a while; making a soft, whirring noise that reminded me of brushing his hair in the morning after his bath. I always used a pale yellow brush with soft, fine bristles that I had found shoved to the back of a drawer. Even on mornings when he was particularly active, Jake was still while I brushed smooth his short blond hair.
That night as I lay in the dark room, on the carpet beside his bed, I imagined Jake talking. "Sharon, I'll get the phone and you get rid of those poached eggs. I'm taking you out to Leoni's for dinner," I made him say, in a voice would be as soothing as the sound of his head rubbing against his pillow.

Carolyn Alessio
Indiana University
Graduate student, creative writing

Caring

The record said he was born 12 weeks early,
So his parents slowly left without him.
Manila files, filled one foot to the brim,
Chronicled how he grew — just barely.
Nurses saw each struggled breath, carefully
caressing and exercising little limbs,
And removing IVs in the oxygen tent, when
His weight and condition became steady.

His mother could only stare in disbelief
At the brown-eyed response to her grin.
Now small, strengthened lungs cried loud;
And his face started to express whims —
It was time to bounce the six-poundling out.


Margaret Hasenberg
College of Associated Health Professions, UIC
Class of 1991
Second Place (tie)

Shelly (May 1990)

Mary L. Anthony, R.N., B.S.N.
MacMurray College
Jacksonville, Illinois

 

Jim Black
College of Medicine, UI-UC
Medical Scholars Program
First Place

The Pink Hair Ribbon

Julie Pease
College of Medicine, UIC
Class of 1991

Code

A beeper sounds, insistent, needling, and a man is dragged from blissful unconsciousness. Dreams are interrupted as reality calls.

"Emergency."
"Drunk."
"Motor Vehicle Accident."
"Trauma."

The man thinks about the odd beings who destroy themselves so that he can build himself. They exist and are defined only in terms of how it is that they may come to die, and how the man may endeavor to preserve them.

"Hypotension."
"Obtunded."
"Arrest."
"Code."

The man watches a crowd assemble in the little room with curtains for walls. He listens to himself give orders, and watches with satisfaction as they are executed, efficiently and precisely.

"Massage."
"Epinephrine."
"Blood gas."
"Shock him."

The flurry of activity escalates, and the man is enthralled. He feels potent and in possession of healing powers. He is the instrument of this creature's salvation even as it is the instrument of his exaltation.

"We've got a rhythm."
"Wait. "
"Fibrillation."
"Shock him."

The man feels some uncertainty, and hesitates slightly, for the form on the table refuses to comply with his demands. The man is offended.

"No pulse."
"Asystolic."
"We lost him."
"I'm calling it."

Silence descends as people rapidly leave. The man washes his hands in a corner, replaying the events in his mind until he's certain that nothing inappropriate was done.

"Is there a family?"
"Ethanol level?"
"Two eighty six."
"Fool. "

The man walks back to his bed and his dreams. The failure was the patient's, not his.

Steven H. Kroft
College of Medicine, UIC
Class of 1991

Cold Whispers...

Marisela Dominguez
College of Medicine, UIC
Class of 1993

Buddies For Life

They liked to go fishing together down at Clinton Lake on warm summer afternoons whenever they could sneak away. Sometimes they would work. ten hours a day, four days in a row assembling the elevators for a new construction -job just so they could grab their gear and head for a favorite fishing pond on Friday. They were lifetime buddies.
Don loved to tinker, fashioning wind chimes out of old pieces of electrical -pipe and fishing line or tearing apart old radios just to see if he could make them work. Although a man of few words, Don would occasionally come up with the ideal comment at just the right time. I remember one time on the job complaining to him about what a worthless individual our foreman was. He just smiled at me and said "Now Pete, everyone in this life has some sort of purpose . . . even if it's to serve as a bad example!" I just had to laugh.
Murray loved to talk to people and would often start up a conversation with a complete stranger, saying something like "How you doin' today?" He never dreamed anyone might want to do him any harm. I think he could have been a politician except that kind of life would have been much too complicated for Murray. He liked to keep things simple.
Like most elevator mechanics, Don and Murray both enjoyed their beer and would frequently stop in at a favorite pub in town trading steins of Blue Ribbon for stories about their latest heroic feats. I can picture them now, parked on a couple of bar stools in the Brass Rail, telling a few of the regulars how they spent the day stacking elevator rails "two hundred feet above ground . . . on cold, naked steel." occasionally they even told the truth.
Since they were both in their sixties and worked hard all their lives, Don and Murray looked forward to retiring so they could pursue their hobbies full time. But then Don got sick. It started out as a little diarrhea, then he noticed he would tire more easily than usual. Not one to let a problem go without taking care of it, Don checked it out with a doctor only to receive a stunning blow — cancer.
I suppose there are several times in a man's life when he may need to switch gears, regroup, change his outlook. What determines a survivor is how well he can do these things. As adaptable and resilient as he was, I don't think anything could have prepared Don for what was in store for him.
The tumor that they found on his colon required aggressive treatment, which included surgical removal, along with about three feet of large intestine. But modern medicine wasn't finished with him yet. Along with the surgical insult to this body came the indignity of the colostomy bag, the chemotherapy, the bland baby food diet. I saw him a few days after the operation. With all the tubes in him, he looked like hell — thin, pale, eyes darting around like a trapped animal. And there was Murray by his bedside.
Despite the advances in medicine, the majority of cancer cases end the same way — it's only a question of time. In Don's case, they arrested the initial cancer, told him he could expect further invasive treatment, and gave him two years to live.
Throughout all this Don tried to maintain a certain amount of dignity. He endured the vomiting, the hair loss, the dizziness brought on by the chemotherapy, accepting no sympathy from those who were more than willing to give it. In fact, held laugh it off and say "You can't feel sorry for me. Hell, I'm sixty-two!" He accepted the inevitability of his own death with a positive attitude, telling me at one point, "Pete, it may sound crazy, but I figure I've got a golden opportunity here. Hell, if I only have two years, I'm going to live them to the fullest." And that's about what he tried to do, at first.
Of course Murray stood by him all the time. He would go over to Don's house almost every day, hoping to fire up his interest in some new project keep him busy, helping him plant tomatoes, strawberries, and corn in the garden he was so fond of, hiding the pain of knowing his best friend was dying. Whatever project they started, they seemed to tackle it with a new intensity, as though trying to cram a lifetime of living in the last remaining months. Toward the end, the intensity gave way to desperation.
During this time, Don talked to me about the disease itself, perhaps because I didn't shy away from the physical details, maybe because he knew he couldn't share with Murray how his tired, old body was slowly rotting away from the inside. oh, Murray did more than anybody else to enrich the remainder of Don's life, he just couldn't talk about it. Perhaps Murray figured it could happen to him.
I learned a lot from my conversations with Don and from watching him deteriorate over those last few months. I learned that cancer can take away more than your life. It can strip you of your character and dignity as well. Early on in the disease, Don talked about hope, about beating the odds. Every time I came to see him he would tell me about some new avenue of research he had read about and ask me what I thought. But as the disease progressed, his ideas for a cure became more and more far-fetched. At one point, Don said to me in frustration, "Pete, you better be a doctor quick and get to workin' on this."
There came a time when Don no longer got out of bed to talk to visitors and friends, not even his lifetime buddy, Murray, who never failed to come anyway. Life became meaningless to Don. He had already made peace with the world, put his affairs in order, accepted his impending death. He just wanted to die and be done with it.
But life didn't let go of him so easily. It chose instead to hold on until nothing remained of the man called Don. He died without dignity. He breathed his last breath alone in a dark room, withered away to a shadow of the man I knew, estranged from the rest of the living world.
Though Murray never deserted him in life, I think he felt relieved at Don's death, grateful for the end of the suffering. He didn't shed any tears at the funeral. Instead he showed a calmness about him, like someone who has seen hell and returned and now could no longer be intimidated by it.
Afterward Murray just went on living, though more slowly, with less enthusiasm. I stop by to see him as of ten as I can and we talk about elevators or old times at the Brass Rail with Don. Mow, there's a new problem. Last week Murray told me he had cancer of the esophagus. He will need all the help I can give him.

Peter R. Curio
College of Medicine, UI-UC
Medical Scholars Program

dementia 13

trails of discarded fragments
float in the slipstream
behind the being

that was him
Losing weight and memory
memory and weight

as if memory
had weight
like a heavy metal trophy

on a thick marble base
Torn from its place
tossed aside

so that when he walks by
I can hear the clatter
and feel the turbulence

in his wake as
he becomes lighter and
lighter
Prayer #3
Flexion Contracture
Trying to stretch
your legs
out of the fetal position

you've assumed
attempting to return
to that watery eden

I feel the wetness
that you lie in now
cold and acrid
inhospitable

I stretch
your legs and
they spring back
like salmon
returning up river

Daniel J. Brauner, M.D.
College of Medicine, UIC
Second Place (tie)

S. David Lo
College of Medicine, UIC
Class of 1994


I don't know how I ended up there, but I'm standing on a white, dusty gravel road with occasional pot holes and bumps. I can't see anything on the sides of the road because of the trees. They're very tall and densely growing. Heavy, dark and green. In front of one is a white pick-up truck (no cap) with a little rust, a little dirt - runs great. And to the back bumper is tied this thick, coarse rope. I've got the other end of the rope in my hand.
Then the pick-up starts to drive. Slowly. I have no problem keeping up as I walk at a medium pace behind the truck. It's a pleasant sunny day, and I even enjoy the surroundings as I go. But - after awhile the truck starts speeding up. Not too much. And I'm forced to jog a little. It's OK though. I can handle it. As time goes on, I become somewhat fatigued, but instead of slowing down, I feel the rope in my hand pulled harder as the truck increases its speed. I now must run. Full, hard running and I don't like it, but I do it. As I begin to get that strange taste in my mouth, I know - I won't be able to keep at this pace for very long. Even as I'm considering this, the truck once again speeds up. As it does, I grab on to the rope with both my hands, my foot hits a pothole, and I fall onto my chest. The truck keeps on at a pretty good clip.
So I'm being dragged down a bumpy gravel road and the dust is billowing up all around me. My legs are still moving around. Still trying to run? Trying to get me back up even though if I was up, I couldn't run along over the dry, sharp gravel and the potholes. I sort of rest. But If I did, my head would be dragging along and bouncing off the ground. I figure I'm lucky because at least I don't have to deal with that.
So I start wondering why I don't let go of this rope. I figure it might be because when I started this whole scene, I thought I saw a fishing pole in the back of the pick-up. Maybe there's even a six-pack of beer. And when this insane cigarette inhalation is over, I'll be able to enjoy the time. But now I'm bouncing all over and my vision is obscured by clouds of dust hanging in the air. II m not sure, but maybe what I saw in the back of the truck might have been a gun. Or maybe it was just nothing. A stick or a piece of conduit.
My other concern is who's driving. I have a fear that it might be me. If it is, I'll at least have the consolation that if I die here at the end of my rope, at least this truck will have to stop.

Christopher Vittore
College of Medicine, UIC
Class of 1994

Why Bother?

Jim Black
College of Medicine, UI-UC
Medical Scholars Program

Vision Impaired

Feiruz Shehadi
ISIS Maintenance Office, UIC

In the Beginning

Feiruz Shehadi
ISIS Maintenance Office, UIC

ACKNOWLEDGEMENTS

As I complete my third year as editor, and Body Electric's seventh edition, I am continually amazed at the seemingly paradoxical yet inherent position of literature and the arts in medicine. Wherever there are human beings who live and die, work and play, the arts will always flourish. And I thank all those contributors who have made Body Electric a showcase for this phenomenon in the sciences.

This edition of Body Electric would not be possible without Suzanne Poirier, PhD, whose dedication, patience, and work are greatly appreciated. My gratitude is also extended to Hyman Muslin, MD, for serving as our final judge in the competition that accompanies this publication. And a special thanks to our faithful typist, Bernice Coleman.

Julie Pease
Editor: JULIE PEASE
College of Medicine '91
Advisor: SUZANNE POIRIER, Ph.D.
Department of Medical Education
Design: BILL MAYER
Office of Publications Services