AIDS BOOK REVIEW JOURNAL No.57

AIDS BOOK REVIEW JOURNAL

University of Illinois at Chicago

H. Robert Malinowsky

Editor

ISSN 1068-4174

Number 57-April/May/June, 2000


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1001. Parting Company: Understanding the Loss of a Loved One: The Caregiver's Journey, by Cynthia Pearson, Margaret L. Stubbs.
1002. AIDS Capitation, edited by David Alex Cherin, G. J. Huba.
1003. Handbook of Economic Evaluation of HIV Prevention Programs, edited by David R. Holtgrave.
1004. Diva, by Rafael Campo.
1005. Family and HIV Today: Recent Research and Practice, by Robert Bor, Jonathan Elford.
1006. San Francisco General Hospital Handbook of HIV Management: A Guide to the Practical Management of HIV-Infected Patients, by Paul A. Volberding, Judith A. Aberg.
1007. AIDS, by William A. Check.
1008. HIV, Health, and Your Community: A Guide for Action, by Reuben Granich, Jonathan Mermin.
1009. HIV/AIDS: A Guide to Primary Care Management, by Peter J. Ungvarski, Jacquelyn Haak Flaskerud.
1010. When Doctors Say No: The Battleground of Medical Futility, by Susan B. Rubin.
1011. Blood Saga: Hemophilia, AIDS, and the Survival of a Community, by Susan Resnik.
1012. Medscape HIV/AIDS 1999 Annual Update, edited by John P. Phair, Edward King.

1001. Parting Company: Understanding the Loss of a Loved One: The Caregiver's Journey, by Cynthia Pearson, Margaret L. Stubbs. 1999. Seal Press, 3131 Western Ave., Ste. 410, Seattle, WA 98121. 336p., bibliog. ISBN 1-58005-019-0. $18.95. (Descriptors: Psychological Aspects; Terminally Ill; Home Care; Caregivers; Case Studies)

Although death is not what one likes to talk about over coffee, it is a topic that one cannot escape. Death is always with us and we all learn to cope with it in our own way. "Parting Company presents many perspectives on the experience of attending to the dying, including those of both lay and professional caregivers. The first-person accounts we have gathered and the observations we have made about them in the commentary at the end of this book place the caregiver at center stage." It is with this in mind that Pearson and Stubbs have provided the reader with insights into how death is a constant that is happening everyday in everyone's lives. They have skillfully provided us with the knowledge of "how we come to accept death when it occurs, or sometimes refuse to accept it; and how we stretch, or cannot stretch, to accommodate death-in-life."

The interviews are with caregivers who like themselves are constantly faced with caring for the dying. There are a wide range of accounts. It is hoped that this book will not discourage people from undertaking home care for the dying, but to help them more realistically make decisions for themselves and their loved ones. Some of the accounts include: "A young widow recounts caring for her husband, a physician dying at home of melanoma;" "A middle-age woman describes her alcoholic mother's unexpected death;" "A cancer specialist reflects on his patients and their disease;" "A college student struggles to make the most of her mother's last days;" and "an expert on family systems reflects on her family's care of her frail, elderly husband."

A recommended book for personal libraries of care givers and for public libraries. Academic libraries serving strong social work programs will want this book, too.

1002. AIDS Capitation, by David Alex Cherin, G. J. Huba. 1998. Haworth Press, 10 Alice St., Binghamton, NY 13904-1580. 115p., bibliog., index. (Home Health Care Services Quarterly, v.17, no.1, 1998). ISBN 0-7890-0654-5. $34.95. (Descriptors: Patient Care; Capitation Fees; Home Care; Cost Control; Community Health Services; Terminal Care; Nursing Models)

Capitation is a health care model where the health care "is capitated, or paid on a flat fee basis per patient per month." The six articles focus on the "Transprofessional Model of end-stage care in HIV-AIDS." This model is a home-based case management and direct service care model "which blends curative and palliative modalities in care of end-stage AIDS patients in order to provide seamless, effective and efficient services to these patients."

The six articles are: "A National Program of Innovative AIDS Care Projects and Their Evaluation," "The Transprofessional Model: Blending Intents in Terminal Care of AIDS," "Evaluation of the Transprofessional Model of Home Health Care for HIV/AIDS," "A Typology of Service Patterns in End-Stage AIDS Care: Relationships to the Transprofessional Model," "Qualitative Issues Related to the Transprofessional Model of End-Stage AIDS Care," and "HIV Healthcare Delivery and Managed Care: Applications and Implications from the Special Projects of National Significance Program." A recommended book for all academic libraries.

1003. Handbook of Economic Evaluation of HIV Prevention Programs, edited by David R. Holtgrave. 1998. Plenum Press, 233 Spring St., New York, NY 10013. 281p., bibliog., index. (AIDS Prevention and Mental Health). ISBN 0-306-45749-0. $69.50. (Descriptors: Prevention; Cost Effectiveness; Government Policy)

Funding for HIV prevention programs is very limited. Deciding what gets funded and what does not get funded can be a mind bending experience for all those that are involved in the decision making process. "This book is an in-depth discussion of the methods, applications, and utilization of cost and cost-effectiveness analysis in HIV prevention resource allocation decision making." It is divided into three sections. The first delves into the methods of cost and cost-effectiveness analysis. The second section is devoted to reviews of cost-effectiveness analyses of particular types of HIV prevention interventions. Finally, the third section addresses issues of how the results of cost-effectiveness analyses are used or might be used.

The authors admit that much needs to be done but "studies have already shown that HIV prevention can be a cost-saving or cost-effective use of funds, and the studies have provided a great deal of information about the affordability of various HIV prevention interventions. This is not the easiest book for the layperson to read but for the researcher and economist, it is an excellent book to consult. Recommended for all academic libraries.

1004. Diva, by Rafael Campo. 1999. Duke University Press, PO Box 90660, Durham, NC 27708-0660. 98p. ISBN 0-8223-2383-4, 0-8223-2417-2pbk. $39.95, $14.95pbk. (Descriptors: Novel)

Diva is Rafael Campo's third collection of poems that "explores further the epic themes of his Cuban heritage and his American newness, his work as a doctor caring for AIDS patients and his identity as a gay man." These are stirring poems that make you think as you read them, trying to understand the life of this gifted man. His other two award winning collections of poems are What the Body Told and The Other Man was Me: A Voyage to the New World. Recommended for all academic and large public libraries.

1005. Family and HIV Today: Recent Research and Practice, by Robert Bor, Jonathan Elford. 1998. Cassell, 370 Lexington Ave., New York, NY 10017-6550. 279p., bibliog., index. ISBN0-304-70188-2. $24.95. (Descriptors: Family; Social Support; Partners; Parents; Children)

"This volume makes available to researchers and clinical practitioners some snapshots of what is actually going on for people--how HIV is affecting their live, how HIV is affecting them in their social and familial relationships." It provides a better understanding of changes in society and social groupings as well as ways in which people are associating with one another in meaningful social units. A host of authors have put together 21 excellent articles grouped into four broad areas: disclosure, social support, partners, and parents and children. Each article touches on how AIDS has affected today's families from the time of disclosure that an individual is HIV positive to death that leaves children without a family.

Some of the well-written articles include: "Culturally Sanctioned Secrets? Latino Men's Nondisclosure of HIV Infection to Family, Friends, and Lovers;" "Negotiating Sexual Relationships after Testing HIV-Positive;" "Reliance by Gay Men and Intravenous Drug Users on Friends and Family for AIDS-Related Care;" "Factors Associated with Hispanic Women's HIV-Related Communication and Condom Use with Male Partners;" "Orphan Prevalence and Extended Family Care in a Peri-Urban Community in Zimbabwe;" and "The Orphan Problem: Experience of a Sub-Saharan Africa Rural Population in the AIDS Epidemic."

This is an excellent book for all researchers to consult. It provides some insights that are sometimes overlooked in today's struggle to continually educate everyone about HIV infection. A highly recommended book for all libraries.

1006. San Francisco General Hospital Handbook of HIV Management: A Guide to the Practical Management of HIV-Infected Patients, by Paul A. Volberding, Judith A. Aberg. 1999. Parthenon Publishing Group, One Blue Hill Plaza, PO Box 1564, Pearl River, NY 10965. 212p., bibliog., index. ISBN 1-85070-938-6. $39.95. (Descriptors: Diagnosis; HIV Infections; Treatment)

There are numerous books that speak to the management of HIV-Infected patients. The field of HIV medicine is constantly changing with the introduction of new drugs, treatment strategies, and laboratory assays. There still is no cure and there is no vaccine, but serious complications have decreased. This, however, does not mean that we let our guard down. "It is critical that the different treatments for HIV are chosen and applied correctly." This book seeks to fill the gap between conventional textbooks and small pocket summaries. "Designed for hospital as well as outpatient settings, the book gets to the heart of the matter with algorithms, drug doses and complications. It reviews the management of specific populations as well as including the most rapidly growing part of the epidemic, HIV in women."

The 7 chapters cover: "The Initial Evaluation of an HIV-Infected Patient," "Standards of Care for HIV-Positive Women," "Antiretroviral Therapy for HIV Disease," "HIV-Related Conditions," "Diagnostic Approach to Respiratory Disease," "Diagnostic Approach to Neurological Disease," and "Comprehensive Reference to Drug Therapy." One appendix--Drug Regimens for Adults and Adolescents--provides by pathogen the indications and the first choice and alternative choices for preventive regimens. The second appendix--Prevention of Exposure Recommendations--advises patients concerning prevention of exposure to opportunistic pathogens. This is an excellent book recommended for all practicing physicians who treat HIV-infected patients. It is a must book for all medical libraries, large public libraries, and academic libraries.

1007. AIDS, by William A. Check. 1999. Chelsea House, 1974 Sproul Rd., Ste. 400, Broomall, PA 19008-0914. 127p., illus., bibliog., index. (Encyclopedia of Health: Medical Disorders and Their Treatment). ISBN 0-7910-4885-3. $17.95. (Descriptors: Popular Works)

This is a frank, upfront book for young people who need to know about HIV infection and AIDS. It may not be accepted by all groups in today's societies, since prevention is stressed through the use of condoms. It provides in a well-written text information about AIDS, its progression, the people who are fighting to find a cure, the celebrities that have become HIV-positive, current treatments, and the future. "After nearly two decades of trying to beat this deadly virus, researchers now stand on the brink of profound breakthroughs in treatments, vaccines, and perhaps even a cure. Almost everyone feels certain it will happen; the question is whether it will happen in time--and whether there is a willingness to work together--to save a large part of the world's population." A highly recommended book for all school and public libraries.

1008. HIV, Health, and Your Community: A Guide for Action, by Reuben Granich, Jonathan Mermin. 1999. Stanford University Press, Stanford, CA 94305-2235. 245p., illus., bibliog., index. ISBN 0-8047-3351-1. $14.95. (Descriptors: Community Health Aides)

This is truly a book of action. It is intended to help communities study and formulate a plan of action in educating individuals about HIV infection. It "is meant for people who are searching for answers to questions about HIV prevention, epidemiology, diagnosis, and treatment." Each of the chapter's begins with a fictional story to set the tone for what is trying to be put across as an action plan. These stories take place all over the world: Pakistan, Morocco, South Korea, China, Uzbekistan, Ghana, French Guiana, Mexico, Gabon, Brazil, Vietnam, United States, and Peru. Each chapter asks a question: "What Is HIV?," "What are the symptoms of HIV infection?," "Who has HIV?," "Where are people with HIV?," "How can people avoid HIV?," "Can I get HIV from going to the clinic?," "How does the test work?," "Should I take the HIV test?," "How can I counsel someone who is different from me?," "How can I help?," "How can I be a better teacher?," "How can we start our own HIV project?," and "How can we get help to start a project?"

This is a very well written book intended for the layperson and intended for all parts of the world. It points out many things that people question. This is a book for people to be involved in. It is a book that individuals can use to begin to cause something to happen and help their fellow human beings. Highly recommended for all libraries around the world.

1009. HIV/AIDS: A Guide to Primary Care Management, 4th edition by Peter J. Ungvarski, Jacquelyn Haak Flaskerud. 1999. W. B. Saunders, The Curtis Center, Independence Square West, Philadelphia, PA 19106. 544p., bibliog., index. ISBN 0-7216-7322-8. $45.00. (Descriptors: HIV Infections; Treatment; Nursing)

Now in its 4th edition, this outstanding handbook continues to provide guidance for primary care management. A great deal has changed since the first edition in 1986. The primary goal of this new edition "is to provide health care professionals who care for people infected and affected by HIV with a clinical reference tool that can increase their understanding of HIV and assist them in their care management."

Topics covered in this excellent guide include: a history of the epidemic; discussion of health promotion and disease prevention; the needs of infants, children, adults, and families; symptom management; guidelines for the use of highly active antiretroviral therapy; psychosocial and spiritual needs; cultural and social diversity issues; needs of special populations; alternative and complementary therapies; legal and ethical concerns; community-based and long-term care; stresses and needs of health care providers; and drugs most frequently prescribed to treat HIV.

This is an excellent guide written for many levels of individuals. It provides a wealth of information that is up-to-date and accurate. The references at the end of each chapter provide an entrance to areas that can be read more in depth. This is a highly recommended book for all libraries.

1010. When Doctors Say No: The Battleground of Medical Futility, by Susan B. Rubin. 1998. Indiana University Press, 601 North Morton St., Bloomington, IN 47404-3797. 191p., bibliog., index. ISBN 0-253-33463-2. $24.95. (Descriptors: Medical Ethics; Therapeutics; Decision Making; Moral and Ethical Aspects; Care of the Sick)

There will ultimately come a time when everyone has to make a decision as to how much more medical care an individual needs, even though the outlook is very grim. Some doctors want to continue treating until the last breath. Other doctors want to stop treating because they see no positive results. This book looks at the controversial issue of bioethics. The patient has always had the right to say no to unwanted medical treatment. On the other hand, the patient and the family, also, have the right to have everything possible done, even if the doctor says no. This is a very serious bioethical questions when the health care marketplace is demanding that "enough is enough" when the treatment has reached its limit and refuses to pay more. The doctors are caught in the middle. This book encourages more interaction between the doctor, the patient, and the family so that all understand when treatment should stop. This is not an easy book to read and the topic may not be the most interesting for many individuals but it is a recommended book for all academic and medical libraries.

1011. Blood Saga: Hemophilia, AIDS, and the Survival of a Community, by Susan Resnik. 1999. University of California Press, 2120 Berkeley Way, Berkeley, CA 94720. 292p., bibliog., index. ISBN 0-520-21195-2. $29.95. (Descriptors: Hemophilia)

"After thousands of years, hemophilia, an incurable, inherited disease, has been transformed into a readily manageable chronic illness. Currently, the possibility of a cure seems imminent, due to the development of gene insertion therapy." This is great news, especially since AIDS almost derailed the progress in the 1980s when blood was tainted with the HIV virus. This book is a history of research on hemophilia from the 19th century to 1998. This was a rocky history where research was confused, politics stuck its ugly head into the issues, and finally the great strides in biotechnology.

This is a very interesting book that is readable from layperson to researcher. It provides a great deal of information and clears up a lot of myths that have surrounded hemophilia. It has also smoothed over the conflict between AIDS and hemophilia, showing that communities can rise to the challenge and confront issues that are in conflict. A highly recommended book for all libraries.

1012. Medscape HIV/AIDS 1999 Annual Update, edited by John P. Phair, Edward King; incorporating the proceedings of the 9th Clinical Care Options for HIV Symposium. 1999. Medscape, 134 West 29th St., New York, NY 10001. 153p., bibliog. Free. Available at http://hiv.medscape.com. (Descriptors: Review)

This is a summary of the 9th Annual Clinical Care Options for HIV Symposium held June 3-6, 1999, co-sponsored by the Northwestern University Medical School. It describes advancements in the state-of-the-art management of the HIV-infected individual in 1999. Topics covered include: HIV cellular reservoirs, immunopathogenesis of HIV infection, primary HIV infection, antiretroviral strategies and controversies, managing drug resistance, antiretrovirals: new agents and targets, drug interactions, opportunistic infections, metabolic abnormalities, advances in viral hepatitis, neurologic disorders, HIV vaccines, family planning for HIV-infected individuals, and preventing STD/HIV infections. Also included is a quick guide to antiretrovirals. This is an excellent review and should be in all medical libraries.


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Last updated 6/30/2000
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