A I D S B O O K R E V I E W J O U R N A L

University of Illinois at Chicago

H. Robert Malinowsky

Editor

ISSN 1068-4174

Number 7 - February 1994


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Reviewed in this issue:

163. AIDS: The Challenge: Understanding, Education and Care, by Neil Small.
164. AIDS Law Today: A New Guide for the Public, edited by Scott Burris, Harlon L. Dalton, Judith Leonie Miller, Yale AIDS Law Project.
165. AIDS Dissidents: An Annotated Bibliography, by Ian Young.
166. AIDS: Lessons from the First Decade, by M. Michael Appleman, Christian DellaCorte.
167. Sexually Transmitted Diseases, edited by Thomas C. Quinn.
168. AIDS: Women, Drugs and Social Care, edited by Nicholas Dorn, Sheila Henderson, Nigel South.
169. 100 Questions and Answers About AIDS: A Guide for Young People, by Michael Thomas Ford.
170. Fluid Exchanges: Artists and Critics in the AIDS Crisis, edited by James Miller.
171. AIDS: Opposing Viewpoints, edited by David L. Bender, Bruno Leone, Michael D. Biskup, Karin L. Swisher.
172. Confronting AIDS Through Literature: The Responsibilities of Representation, edited by Judith Laurence Pastore.

Pre-1992 books briefly mentioned:

173. Serving HIV-Infected Children, Youth, and Their Families: A Guide for Residential Group Care Providers, by Paul Gitelson, L. Jean Emery.
174. Living with the AIDS Virus: A Strategy for Long-Term Survival, by Parris M. Kidd, Wolfgang Huber.
175. You and HIV: A Day at a Time, by Lynn S. Baker.
176. Children, Adolescents, and AIDS, edited by Jeffrey M. Seibert, Roberta A. Olson.
177. Christians in the Age of AIDS, by Shepherd Smith, Anita Moreland Smith.
178. Male Homosexual Behavior and the Effects of AIDS Education: A Study of Behavior and Safer Sex in New Zealand and South Australia, by B. R. Simon Rosser.
179. Culture and AIDS, edited by Douglas A. Feldman.

163. AIDS: The Challenge: Understanding, Education and Care, by Neil Small. 1993. Avebury/Ashgate Publishing Co., Old Post Road, Brookfield, VT 05036. 172p., bibliog., index. ISBN 1-85628-455-7. $54.95. (Descriptors: Education, Social Issues, Caregivers)

The author identifies two challenges in dealing with HIV and AIDS: how we understand and respond to HIV and AIDS and the accepted ways we have understood illness and the individual and social response to illness. The first chapter considers "how we seek to view the epidemic via contemplating opposites--the guilty and the innocent victim, for example." This is a very interesting chapter that presents much to think about and can be summed up in the words of the author: "But AIDS does not just exist within the body. It exists within society. It generates social needs and social reactions...But AIDS occupies a social space that is at the core of many things fundamental to an understanding of the societies in which it is situated." From his writing he ūoints out that "we can learn from the experience of HIV and AIDS to construct a model of caring about, and caring for, people living with HIV and AIDS that could be of widespread importance." In other words, lets apply what we are learning to other diseases.

Chapter two discuses "how to best seek an understanding of the personal and social impact of AIDS." The connections and differences between HIV and AIDS and other diseases is discussed in detail covering such diseases as Sickle Cell Anaemia, Syphilis, Hepatitis-B, Herpes, Cancer, Epilepsy, and Multiple Sclerosis. One thing that the AIDS epidemic has brought about is a considerable body of autobiographical writing, much of it by gay men. As a result these autobiographies will help in speaking for those with AIDS. "It is through narrative that the researcher can avoid objectifying and can contribute to empowerment." The chapter on health education presents new problems and prompts imaginative solutions. The ideal model of health education "is to provide information and individual therapy, on the assumption that information changes attitudes, which increase intentions to engage in healthy behaviours, which result in changed behaviour." The most important part of this chapter is a very good history of what has been done in health education as it relates to AIDS and HIV.

The remaining chapters cover "Caring about and caring for people with AIDS" and "The future challenge." It is best summed up : "The challenge of AIDS is not then just the challenge of the virus but the challenge of the context the virus acts within. AIDS and germs; AIDS and politics; AIDS and prejudice and AIDS and poverty are all aspects of the challenge of AIDS." "We can see the end of the century as a time in which the body and intimacy are seen as a trap and a threat. Or we can develop a new aesthetic of intimacy." There is a 22-page bibliography at the end of the text. This is a book that needs serious reading and thinking. It is not easy and cannot just be picked up and read quickly. Neil Small gives the reader a great deal to think about. It is recommended for academic, medical and large public libraries. (H. Robert Malinowsky)

164. AIDS Law Today: A New Guide for the Public, edited by Scott Burris, Harlon L. Dalton, Judith Leonie Miller, Yale AIDS Law Project. 1993. Yale University Press, 92A Yale Station, New Haven, CT 06520-7388. 443p., bibliog., index. ISBN 0-300-05505-6. $40.00. (Descriptors: Law and Legislation, United States, Public Health Measures, Social Policies, Health Care) (Contributors to this volume: Taunya Lovell Baks, Univ. of Maryland; Allan M. Brandt, Harvard Medical School; Troyen A. Brennan, Yale University; Helena Brett-Smith, Hospital of St Raphael in New Haven; Scott Burris, Temple Law School; Harlon L. Dalton, Yale Law School; Donna I. Dennis, Office of the New York Attorney General; Daniel M. Fox, Milbank Medical Fund; Alexa Freeman, National Prison Project; Gerald H. Friedland, Yale Univ. School of Medicine; Larry Gostin, American Society of Law and Medicine; Donald H. J. Hermann, DePaul University College of Law; Arthur S. Leonard, New York Law School; Daniel R. Mandelker, Washington Univ. Law School; Belinda Ann Mason, journalist and fiction writer; Judith Leonie Miller, Yale Law School; Mark Scherzer, private attorney in New York City)

"This book is about law. It is not, however, aimed exclusively (or even primarily) at those who are steeped in the law. Rather, it is meant for whoever has a professional need to come to grips with the legal issues spawned by the HIV epidemic--for educators, counselors, legislators, policymakers, law enforcement and corrections officials, public health officials, health care providers, social service providers, research scientists, employers, employee representatives, insurers, providers of goods and services, social workers, social scientists, social activists, representatives of interest groups, the staffs of drug treatment programs, members of AIDS support groups, and, of course, lawyers for any and all of the above." Part one provides background information, covering such topics as law for non-lawyers and transmission and treatment. It also gives a good historical perspective that emphasizes the social values and HIV.

Part two covers the primary public health measures needed to combat HIV. It provides discussions of the traditional public health strategies, education, testing, disclosure, and the right to privacy and the role of drug dependency and HIV. The chapter on education is excellent and points out the problems that are encountered in educating the public. The third part covers HIV in the public sector and covers screening and discrimination, reproduction and parenting, criminal law, and HIV in prison. Since HIV in prisons is a growing concern, this is a lengthy chapter that discusses all areas and problems in dealing with HIV in the prison and jail setting. Part four covers the private sector response to HIV and the last part discusses HIV in the health care and insurance systems.

This is a very well written book that should be read cover to cover. It is detailed but not so technical that the educated layperson cannot understand what is being said. The editors recognize that many people do not get the laws that they deserve and that "the ability to effect change is more real in theory than in practice." The editors further state the real problem: "Taking into account the inherent deficiencies of the law, the impact of an increasingly diffident judiciary, the torpor of a hobbled Congress, and the malign neglect of two presidents, we still retain the shreds of our optimism, at least insofar as we feel that change is our responsibility, and even within our power as citizens." This is a must book for all libraries. (H. Robert Malinowsky)

165. The AIDS Dissidents: An Annotated Bibliography, by Ian Young. 1993. Scarecrow Press, Inc., PO Box 4167, Metuchen, NJ 08840. 264p., bibliog., index. ISBN 0-8108-2675-5. $32.50. (Descriptors: Controversial Literature, Alternative Treatment, Political Aspects)

This unique bibliography covers that literature that contradicts what is commonly published about AIDS and HIV. There is a considerable amount of this literature that surrounds the nature and origins of the syndrome and appropriateness of various medical, political, and other approaches. Needless to say, some of this literature may be harmful if accepted, but on the other hand, scientists and researchers need to be aware of it in order to make their own writings of research more understandable. Also included is information on alternative treatment. Part one lists all available English language books and pamphlets "that deviate substantially from officially accepted positions." Each entry is annotated. Part two contains a selective list of available audiotapes, also annotated and part three consists "of a selection of articles published in periodicals, journals, and the daily press" with brief annotations. The fourth part lists periodicals devoted entirely or substantially to dissident AIDS writings or news of holistic or experimental treatments. The last part contains reprinted documents on key aspects of the controversies.

There are 737 entries, making this one of the largest bibliographies on the subject available. The dissidents themselves can be categorized into radical, political, proponents of holistic and alternative therapies, proponents of mental and spiritual approaches, alarmists, and survivors. This is a necessary book for any library, especially medical libraries where questions may arise from consumers reading some of this literature. (H. Robert Malinowsky)

166. AIDS: Lessons from the First Decade, by M. Michael Appleman, Christian DellaCorte. 1992. Kendall/Hunt Publishing Co., PO Box 539, Dubuque, IA 52004-0539. 169p., illus., bibliog., glossary. ISBN 0-8403-7206-X. $29.95. (Descriptors: History, Social Aspects, Medical Aspects, Politics, Therapy)

The primary goal of this book is education. It "is based on the concept that a continuum exists, extending from the molecular biology of the HIV virus through the opportunistic infections, the psychology of people with AIDS, the epidemiology and sociology of the disease to the government response and that none of these can be truly dealt with in isolation." The book is intended for those who do not have any prior scientific knowledge and could be used as a text for a short general course on AIDS.

After a brief historical overview the second section covers the biomedical context and provides some insight on the biology of man and virus, the immune system, the AIDS virus, testing, and the syndrome. Section three covers the person, the parish, the press and the public with discussions on the role of the media, psychological aspects, and religion. Section four covers power and politics, dollars and sense and section five provides the progress, the hope and the reality. Each chapter is brief with a wealth of information. The chapter on religion, for example, provides a discussion of the relevance of religion to AIDS, especially in respect to disease and religion. It then states positions that have been taken by Judaism, Catholicism, and Protestantism. It ends with a reference for further reading and two questions for the reader to think about, one of which is very interesting: "If the AIDS epidemic in the United States had no homosexual component, what differences might have occurred in the response of the religious community?"

Although the text is brief and a great amount of information is covered, this is still a good overview of what we have learned in the first ten years of the AIDS crisis. It would be a good book for school libraries as well as public and academic. It provides an understanding of viruses and how they lead to epidemics and a "new appreciation of the necessity for a rapid governmental action in health crises and the importance of separating politics and public health." (H. Robert Malinowsky)

167. Sexually Transmitted Diseases, edited by Thomas C. Quinn. 1992. Raven Press, 1185 Ave. of the Americas, New York, NY 10036. 340p., illus., bibliog., index. (Advances in Host Defense Mechanisms, v. 8) ISBN 0-88167-882-1. $85.00. (Descriptors: Sexually Transmitted Diseases, Immunological Aspects, Epidemiology, Syphilis, Herpes, Research) (Contributors to this volume: Gordon L. Ada, Australian National Univ.; Rhoda Ashley, Children's Hospital and Medical Center, Seattle, WA; Harlan D. Caldwell, National Institutes of Health; Willard Cates, Jr., Centers for Disease Control; Myron S. Cohen, Univ. of North Carolina at Chapel Hill; Christopher Elkins, Univ. of North Carolina at Chapel Hill; Anthony S. Fauci, National Institutes of Health; R. Phillip Heine, Univ. of North Carolina at Chapel Hil|; Penny J. Hitchcock, National Institutes of Health; David M. Koelle, Univ. of Washington; Sheila A. Lukehart, Harborview Medical Center; D. Scott Manning, National Institutes of Health; Richard P. Morrison, National Institutes of Health; Dorothy L. Patton, Univ. of Washington; Thomas C. Quinn, National Institutes of Health; Roger G. Rank, Univ. of Arkansas for Medical Sciences; Zeda F. Rosenberg, National Institute of Allergy and Infectious Diseases; Robert T. Schooley, Univ. of Colorado Health Sciences Center; Keerti V. Shah, Johns Hopkins Univ. School of Hygiene and Public Health; P. Frederick Sparling, Univ. of North Carolina at Chapel Hill; Raphael P. Viscidi, Johns Hopkins Univ. School of Medicine; Judith N. Wasserheit, National Institutes of Health)

"The reviews in this volume, which are multidisciplinary, provide a broad spectrum of current information in the field of STDs, which should be highly useful to basic scientists, epidemiologists, clinicians, and public health officials." STDs have afflicted society over the centuries but since 1981, AIDS has been added, making research on STDs more focused. Links between the various STDs has been part of research and will continue to be. Only one of the 12 chapters in this volume covers AIDS--"Immunopathogenesis HIV Infection." The other chapters cover epidemiology of STDs, mucosal defenses and microbial pathogens of the genital tract, Chlamydia trachomatis, pelvic inflammatory disease, Neisseria Gonorrhea, Syphilis, genital herpes, genital tract infections, human cytomegalovirus, vaccination for control of STDs, and future research on STDs.

The HIV chapter, by Zeda F. Rosenberg and Anthony S. Fauci, is a review of the progress of HIV since 1981, the research, and the future. Since this book is intended for researchers, it is highly scientific and probably would not be understandable by the layperson. The first part of the chapter covers research in the etiologic agent, followed by immunopathogenic mechanisms. Both parts are detailed covering such topics as HIV infection of monocytes and macrophages, HIV infection of other cell types, activation of latent HIV infection, mitogens and antigens, heterologous viruses, and cytokines. The last part covers neuropsychiatric manifestations. The authors summarize the chapter by stating: "The successful control of HIV infection through either therapeutic agents or vaccines requires an extensive understanding of the agent itself and its pathogenesis." "Further research into the pathogenesis of HIV infection using both in vitro experiments and in vivo studies in novel small-animal models, such as the SCID mouse model, should continue to provide important insights for the control of AIDS, in particular, and other human diseases, in general."

All of the other STD chapters are equally as technical and important for the researcher. This is a recommended book for all medical libraries and a standing order for the series should be considered. (H. Robert Malinowsky)

168. AIDS: Women, Drugs and Social Care, edited by Nicholas Dorn, Sheila Henderson, Nigel South. 1992. Falmer Press/Taylor & Francis, 1900 Frost Road, Ste. 101, Bristol, PA 19007. 135p., bibliog., index. (Social Aspects of AIDS, v.1) ISBN 1-85000-873-6, 1-85000-874-4pbk. $69.00, $25.00pbk. (Descriptors: Women and AIDS, Psychosocial Aspects, Drugs) (Contributors to this volume: Shane Butler, Trinity College, Dublin; Malcolm Colledge, Univ. of Salford; Nicholas Dorn, Institute for the Study of Drug Dependence, London; Sheila Henderson, private researcher in Manchester; Sandy Maddison, Newcastle-upon-Tyne Polytechnic; Val Morrison, St Andrews Univ, Scotland; Nigel South, Univ. of Essex; Marguerite Woods, Ana Liffey Drug Project, Dublin)

The research reported in this book was done in 1989. It traces "a path through the highly variable societal and professional reactions to women, HIV and drugs in the late 1980s" in Great Britain. Following the introdu„tory chapter, the book covers perspectives from HIV-positive women in London, pointing out such things as isolation, stigmatization, coping with fears, decisions on pregnancy, caring for themselves, and acquiring the needed resources. The next chapter covers the women's needs in Edinburgh, while the following two chapters cover Dublin and Newcastle upon Tyne. Chapter 6 is an important chapter that discusses the views from the general population and the generic health and welfare professionals in England. During the late 1980s, HIV infections was considered a gay-problem. The reactions from the general public are particularly interesting: "It's been put forward virtually as a self-inflicted disease, hasn't it?"; "I think the disgust bit really comes back to the fact that it's homosexual"; "There's more sex abuse and drug abuse among black people"; "I've read somewhere that it was actually a primate disease. It was a man having sex with a monkey that started it off"; and "I've reqd somewhere that it came from outer space!"

The last chapter outlines the progress, prospects and possibilities for the future. In 1994, it is evident that a lot of what was predicted in 1989 has come true; that is, women are increasingly at risk and more education is needed. Unlike the late 80s, social care of women with HIV and their involvement with drugs are receiving more attention. This book is a good benchmark for the progress that has been made with women, AIDS, and drugs. It is recommended for all medical libraries. (H. Robert Malinowsky)

169. 100 Questions and Answers About AIDS: A Guide for Young People, by Michael Thomas Ford. 1992. New Discovery Books/Macmillan, 866 3rd Ave., New York, NY 10022. 202p., bibliog., glossary, index. ( Open Door Book) ISBN 0-02-735424-5. $4.95. (Descriptors: Juvenile Literature, Miscellaneous)

This well-written book for young people contains 100 questions and answers about AIDS. Four interviews of young people add much to the impact of the book. The first 27 questions cover technical aspects of HIV and AIDS, including where the virus is found, how many people are infected, the definition of full-blown AIDS, how many young people have AIDS, and a vaccine for AIDS. The next section of 20 questions covers fact and fiction; followed by the section on keeping safe with 30 questions dealing with safer sex. Questions concerning condoms, oral sex, spermicides, kissing, and drugs point out bluntly what is involved with unprotected sex. The last section involves 23 questions covering testing and beyond. Also included is a resource guide of hotlines and organizations plus a glossary. This is a highly recommended book for school and public libraries. (H. Robert Malinowsky)

170. Fluid Exchanges: Artists and Critics in the AIDS Crisis, edited by James Miller. 1992. University of Toronto Press, 10 St. Mary Street, Toronto, Ontario M4Y 2W8. 402p., illus., bibliog., index. ISBN 0-8020-5892-2, 0-8020-6824-3pbk. $50.00, $22.95pbk. (Descriptors: Art and AIDS) (Contributors to this volume: Barry D. Adam, Univ. of Windsor; Bart Beaty, Carleton Univ.; Monique Brunet-Weinmann, Univ. de Montreal; Clarence Crossman, AIDS Committee of London; Monika Gagnon, writer and critic; John Gordon, activist; John Greyson, video/film artist; Jan Zita Grover, editor; Daniel Harris, writer; David Kinahan, Univ. of Western Ontario; Arthur Kroker, Concordia Univ, Montreal; James Miller, Univ. of Western Ontario; Jeff O'Malley, writer; Brian Patton, Univ. of Western Ontario; Dahlia Reich, reporter; Margaret A. Somerville, McGill Univ.; Simon Watney, National AIDS Manual; Thomas Waugh, Concordia Univ.; David White, Univ. of Western Ontario)

This is an excellent book that depicts the progress that art and illustration have made in the education of the public about AIDS. It also show the progress, although small, that has been made in providing a catalyst for the political aspects of AIDS. This book can make you feel that the progress that has been made may not be enough. "The diversity of arguments in it, enunciated from various national, political, and sexual standpoints, is meant to provoke constructive debate on the role of the arts in AIDS activism for the 1990s, even as it reflects the engagement of artists and critics with the ethics and politics of AIDS representation in the 1980s." Each section covers a particular aspect of art and illustration: photography, paiÓting, film and video, memorials and public art, prevention campaigns, crisis and criticism, media and mediation, literature, legal and political discourse, and psychosexual discourse. Within these chapters such topics as images of the PWA in America; our lady of AIDS; the syndrome is the system; AIDS in the third world; criticism as activism; AIDS kills fags dead; and sacrificial sex are discussed.

This is a well-researched volume with many footnotes, bibliographies, and excellent illustrations. The text is easy to read and provides a great deal to think about. The reproductions of the illustrations are excellent as is the selection which cuts across all ethnic groups and includes both gay and heterosexual depictions. "Read as a kind of erotic invitation, the title of this volume calls into question the repressively puritanical message of such signs and the anti-symposiastic spirit behind them. Besides suggesting the etymological meaning of symposium, Fluid Exchanges is of course also a take on the official AIDSpeak phrase 'exchange of bodily fluids'--which has deviously translated sex into a kind of high-risk commerce, a commodity transaction."

This book should be in all academic and large public libraries. It has a message and should be read seriously. (H. Robert Malinowsky)

171. AIDS: Opposing Viewpoints, edited by David L. Bender, Bruno Leone, Michael D. Biskup, Karin L. Swisher. 1992. Greenhaven Press, Inc., PO Box 289009, San Diego, CA 92198-9009. 215p., illus., bibliog., index. (Opposing Viewpoints Series). ISBN 0-89908-190-8. $17.95. (Descriptors: Social Aspects, Critical Thinking, Prevention, Treatment) (Contributors to this volume: William B. Johnston; Kevin R. Hopkins; Michael Fumento; Antonia C. Novello; Melanie Scarborough; Joseph Sobran; Timothy F. Murphy; Donna Ferentes; Roberto Gonzalez; William E. Dannemeyer; Sanford F. Kuvin; Evan Wolfson; Otis Damslet; Ralph Dittman; Glenn C. Graber; Caroline R. Graber; Barbara Ruhe Grumet; Sara Nelson; Don Feder; Ray Kerrison; Claudia Morain; Bonnie Shullenberger; Andy Humm; Frances Kunreuther; Ken Sidey; Richard D. Moore; John Lauritsen; John G. Bartlett; Ann K. Finkbeiner; Kirk Johnson; Heidi Ziolkowski)

Why have an opposing viewpoint on the topic of AIDS? The editors state that "The only way in which a human being can make some approach to knowing the whole of a subject, is by hearing what can be said about it by persons of every variety of opinion, and studying all modes in which it can be looked at by every character of mind." To this end it is recommended that one evaluate sources of information, separate fact from opinion, identify stereotypes, and recognized ethnocentrism. This book will certainly cause many persons to react with hostility since it attacks the statements that AIDS is of major concern to the entire population. It challenges the idea that AIDS will become a great concern in the heterosexual communities and provides such statements as that of Charles Krauthammer that AIDS is reported "all out of proportion to its significance since AIDS kills fewer people each year than many other diseases." For each statement there is a counter statement, such as "AIDS is a serious problem for women" versus "AIDS is not a serious problem for women."

These statements and counterstatements are presented in five chapters: "How serious is AIDS?", "Is AIDS a moral issue?", "Is AIDS testing effective?", "How can the spread of AIDS be prevented?", and "How can AIDS be treated?". On the use of condoms, the case for using them is presented along with questions such as "why are people finding it so difficult to use condoms consistently?" and "what does the author recommend to overcome women's resistance to insisting that men use condoms?" The opposing viewpoint presents a statement that could raise the hair up on the back of anyone's neck who firmly believes in the use of condoms: "Imploring a heterosexual couple to reach for a condom before they have relations makes as much sense as telling them to wear crash helmets." Other statements that make one wonder about the individuals who made the statements include: "We are about to adopt the utterly bizarre position that the deadliest disease of the age can be beaten with a 10-cent rubber sheath."; "Yet false prophets are all over TV asserting it can be fixed with a condom. This is the greatest threat of all because children are being fed the lie that sex is safe with condoms."

Every chapter has the same format of pros and cons with questions to consider. It is a well presented discussion, however, since 1991 much of what is discussed has been proven valid and the pro/con discussion becomes a mute point. However, the book does have value in the fact that it strengthens some arguments and makes an individual really look at what is being advocated, even if you do not agree with the arguments. Unfortunately, with a book like this, those who are anti-AIDS or anti-gay will only use that part that benefits their interests without mentioning the other side. If one reads this book, read both opinions with an open mind. Judge the writers and what they have said and bring it in line with what is being written today and not what was written two or three years ago. A book such as this can be as harmful as the user wants it to be. It is, however, recommended for all academic libraries. (H. Robert Malinowsky)

172. Confronting AIDS Through Literature: The Responsibilities of Representation, edited by Judith Laurence Pastore. 1993. University of Illinois Press, 54 East Gregory Drive, Champaign, IL 61820. 267p., bibliog. ISBN 0-252-01989-X, 0-252-06294-9pbk. $39.95, $12.95pbk. (Descriptors: AIDS in Literature, Literature and Society, American Literature, Study and Teaching, Gay men in literature, Literary Collections) (Contributors to this volume: Laurel Brodsley, UCLA; Jed A. Bryan, author; Joseph Cady, Univ. of Rochester Medical School; Sam Coale, author; Michael Denneny, author; Melvin Dixon, author; Larry Ebmeier, author (also known as Clayton R. Graham); David B. Feinberg, author; William Greenway, author; James W. Jones, Central Michigan Univ.; M.E. Kerr, author; Michael Lynch, gay rights activist; Sharon Mayes, author; Paul Monette, author; Judith Laurence Pastore, Univ. of Massachusetts; Joel Redon, author; Paul Reed, author; David Rees, author; May Sarton, feminist novelist; Eve Kosofsky Sedgwick, Duke Univ.; Sandra W. Stephan, Youngstown State Univ.)

This is an excellent book. For those of you who are interested in the literature of AIDS, the novels with an AIDS theme, and any other similar aspect of the written word about AIDS, Pastore has brought together a wealth of information. With my issue number 6 of the AIDS Book Review Journal, this book was a welcome receipt and one that updates, verifies and documents many of the entries in that number 6 bibliography. "Artists have responded to this challenge in every medium available. This collection brings together some of the creative writings AIDS has inspired and examines many of the problems associated with writing about such a horrific disease." Having read this book cover to cover, it has inspired me as a reviewer. For those of you who need a book to use in the classroom, this is the book. As with any horrific disease, plague, or disaster, there is a period of time when no one attempts to write a novel that includes that topic. With AIDS, however, that time was reduced to 3-5 years. As early as 1983, Larry Kramer wrote a fiery essay about the epidemic and by 1985 he had produced The Normal Heart. From that time on, the number of novels, essays, plays, productions, etc. has increased substantially so that now there is a great core of material available for research, reading, use in biblio-therapy, and documentation of what is happening. "One aim of this collection is to show that, in spite of the short time people have been aware of the disease, much variety and breadth already exists in literature of this kind. In this regard, the number of selections here by women show that literature AIDS has not just been the purview of gay men." The varied authors have used a wide variety of ways in which to depict the problems of AIDS: traditional literary genres, some experimental; use of the writings in an educational setting; and problematic issues. "Unless persons of good will unite to effect genuine healing, the metaphors of AIDS will become a reality as the many illnesses in our culture are left to fester and infect our national spirit. Nothing can be done as long as one group is set against another--straights against gays, whites against blacks, men against women. If literature AIDS can contribute in a small way to bringing together in understanding those who are now divided by either ignorance or bigotry, then the efforts of all the contributors to this volume will have been worthwhile." Nothing could be truer and this book is certainly destined to becoming a landmark in this effort.

The first part covers the responsibilities writers have in presenting AIDS to the inquiring public. It covers topics that have created much controversy over the past ten years: AIDS writing and the creation of a gay culture; AIDS writing for young adults; the denial of AIDS; early AIDS fiction; cycles of despair and disease; the sick homosexual; and AIDS as a source of spiritual wisdom. The second part gives a moving example of the kinds of writings that have been produced by such people as Paul Monette, May Sarton, Melvin Dixon, Jed A. Bryan, William Greenway, Joel Redon, David B. Feinberg, David Rees, and Sharon Mayes. Probably the most moving of these was the poem by Jed A. Bryan called "Voices." He has put together a long list of statements that have been uttered over the past years, some supportive and some destructive. Examples of the statements include: "Pleasure is death", "Why should I worry?", "If you've got it, you deserve it", "We can lick this if we all pull together", "It's God's punishment", "Good riddance", "AIDS, huh? So he's a faggot. Always thought so", "God will protect me", "Better still, kill them before they kill us", "Every day's a gift now", and "Time softens everything, even resolve." The last part of the book covers "Literature AIDS: The Classroom." It covers teaching about AIDS and plagues, strategies, and the medical school approach.

Each chapter has a bibliography but the most useful bibliography is the annotated bibliography at the end of the text. "The criteria for inclusion in this bibliography are that the work treats AIDS extensively enough and with enough sympathy and seriousness to make it helpful in combating mistruths about the disease and creating more compassion for those affected by it." The following categories are included: Novels for adults--40 entries; Novels for children and teenagers--7 entries; Short stories, collections, and novellas--19 entries; Poetry--14 entries; Autobiography, memoirs, and personal essays--27 entries; Collections of critical and analytic essays, and individual articles--9 entries; Published plays--13 entries; Unpublished plays--32 entries; Television dramas, independent films, and videos--25 entries; Mixed media, miscellaneous--6 entries; and Music--3 entries.

This is a highly recommended book for all libraries. It should be read from cover to cover. It is only through books such as this that we can fully understand how AIDS affects individuals and not through the journalistic approach in the news media that so often bends the truth or makes one feel so guilty that they want to crawl into a hole and hide. Hate is our worst enemy in this crisis and this book would certainly help to point out the personal and compassionate side of how authors approach the topic. (H. Robert Malinowsky)

173. Serving HIV-Infected Children, Youth, and Their Families: A Guide for Residential Group Care Providers, by Paul Gitelson, L. Jean Emery. 1989. Child Welfare League of America, 440 First St., NW, Ste. 310, Washington, DC 20001-2085. 88p., bibliog. ISBN 0-87868-367-4. $14.95. (Descriptors: Children, Legal Information, Policy) (Contributors to this volume: Virginia Anderson; Robert Horowitz; Alec Gray; Paul Gitelson; L. Jean Emery)

"This guide describes the process by which a residential group care provider agency can prepare to care for HIV-infected children and to move through the process of educating, diminishing fear, and arriving at a basis for responsible decision making." It covers medical and legal information, agency initiatives, agency policy issues, and the present and future challenges. Appendices include definitions and glossary, survey of residential group care provider agencies, list of agencies, and a good resource bibliography. This is a good brief guide and recommended for all caregiver agencies as well as academic, medical, and public libraries. (H. Robert Malinowsky)

174. Living with the AIDS Virus: A Strategy for Long-Term Survival, by Parris M. Kidd, Wolfgang Huber. 1991. HK Biomedical--Education, PO Box 8207, Berkeley, CA 94707. 182p., illus., index. ISBN 0-9624541-0-9. $18.95. (Descriptors: Chronic Disease, Combination Therapy, Epidemiology, Therapies)

The original edition of this text was published in 1990 and received good reviews from physicians and individuals. Its emphasis has been on combination therapy for long-term survival. It has three main themes: realistic survival for those already infected; combination therapy; and the "longer the HIV-infected individual can survive with the virus, the better his or her chances of putting to use more effective therapies as they become available." The seven chapters cover: "HIV-1 infection and the progression to AIDS," "HIV-1 and other contributors to AIDS," "AZT and other RT blockers," "Other promising now therapies," "Egg lipids (Phospholipids) in HIV-1 disease," "Natural antioxidants--first-line defense," and "The program for long-term survival." A very good book for all physicians to read and use in accordance with their own medical course of action. Those who are HIV positive should always be under a physician's care when trying alternative therapies. Recommended for medical libraries and large public libraries. (H. Robert Malinowsky)

175. You and HIV: A Day at a Time, by Lynn S. Baker. 1991. W.B. Saunders Co., The Curtis Center, Independence Square West, Philadelphia, PA 19106. 258p., illus., bibliog., index. ISBN 0-7216-3606-3. $16.95. (Descriptors: Children, Juvenile Literature)

This is a well-written book for teenagers that covers HIV. Although the text is for young people, it can be used very effectively by students, social workers, teachers, health administrators, policy makers and anyone else who is interested in children and AIDS. The illustrations may be somewhat crude, but they are very effective in illustrating what is being discussed. This is a very good book that is recommended for school and public libraries. (H. Robert Malinowsky)

176. Children, Adolescents, and AIDS, edited by Jeffrey M. Seibert, Roberta A. Olson. 1989. University of Nebraska Press, 901 N. 17th St., Lincoln, NE 68588-0520. 243p., bibliog., index. ISBN 0-8032-4186-0. $23.50. (Descriptors: Children, Social Aspects, Adolescents, Psychological Aspects) (Contributors to this volume: Dale D. Chitwood, Univ. of Miami School of Medicine; Sally E. Dodds, Health Crisis Network; Joni N. Gray, Univ. of Nebraska; Heather C. Huszti, Univ. of Oklahoma Health Sciences Center; Marcy Kaplan, Los Angeles Pediatric AIDS Network; Marsha B. Liss, California State Univ.; Patrick J. Mason, Univ. of Oklahoma Health Sciences Center; Brian E. Novick, Albert Einstein College of Medicine; Roberta A. Olson, Univ. of Oklahoma Health Sciences Center; Jeffrey M. Seibert, Center for Attitudinal Healing in Tiburon, CA; Anita Septimus, Albert Einstein College of Medicine; Helen Viviand, Dade County, FL Schools; Marilyn Volker, Health Crisis Network of Miami)

After an introductory chapter that is a medical overview, the book covers in 6 additional chapters: "Three model pediatric AIDS programs," "Psychosocial aspects of AIDS and HIV infection in pediatric Hemophilia patients," "The schooling of children with AIDS," "Educating children and youth about AIDS," "Prevention of pediatric and adolescent AIDS," and "Pediatric AIDS Research: Legal, ethical, and policy influences." A very good book for anyone who works with pediatric AIDS patients. Each of the chapters is written by an authority on the topic providing a wealth of information. A highly recommended, even though it will need updating, book for all medical and academic libraries as well as counselors and pediatricians. (H. Robert Malinowsky)

177. Christians in the Age of AIDS, by Shepherd Smith, Anita Moreland Smith. 1990. Victor Books, 1825 College Ave., Wheaton, IL 60187. 197p., bibliog. ISBN 0-89693-196-X. $9.99. (Descriptors: Religious Aspects, Church Work With the Sick, Religious Life of Patients)

The authors are the founders of the Americans for a Sound AIDS/HIV Policy (ASAP). They believe that the church can help in providing answers to the AIDS crisis by rejecting false prophets who preach the quick-fix strategies of condoms and free needles; rejecting prejudice; and rejecting those who try to replace God as judge. For those who are afflicted with AIDS, the comment that this is the way God is punishing gays, makes many gays angry. As a result, this book may not be the one for them to read. The authors are very intent in making sure that you are a good Christian first and then tackling the problems that lie ahead. True, gays can be and are good Christians, but the majority of the religious straights really do not accept them into their fold. This book offers some solace for the Christian, but it really does nothing for the already harassed and discarded gay who happens to have AIDS. The facts that are presented are, for the most part, true. As a result, this would be a good book for religious libraries. A word of caution: the religious right is doing a great deal of harm in the gay and lesbian communities. As a result, this book may cause more harm than good. (H. Robert Malinowsky)

178. Male Homosexual Behavior and the Effects of AIDS Education: A Study of Behavior and Safer Sex in New Zealand and South Australia, by B.R. Simon Rosser. 1991. Praeger, One Madison Ave., New York, NY 10010. 246p., illus., bibliog., index. ISBN 0-275-93809-3. $59.95. (Descriptors: New Zealand Sexual Behavior; Sexual Behavior; Australia Sexual Behavior; Safe Sex in AIDS Prevention)

This book has three aims: "(1) to document homosexual behavior and life in the age of the Acquired Immune Deficiency Syndrome (AIDS); (2) to empirically investigate the psychology of safer sex; and (3) to evaluate the effects of AIDS education on sexual behavior." Although the research for this book was conducted in New Zealand and South Australia, it is valid for many other parts of the world including the United States. It gives an excellent account of gay life in this part of the world describing behavior, violence, discrimination, religious characteristics, safer and unsafe sex, condom usage, risk-taking, AIDS education, and a national fear campaign about AIDS. The author has provided a great deal of data with extensive bibliographies. He has written the book, basically for the researcher, but also for the general public, especially the gay man who wishes to know more about men who have sex with other men. It is recommended for any public, academic, or medical library. (H. Robert Malinowsky)

179. Culture and AIDS, edited by Douglas A. Feldman. 1990. Praeger, One Madison Ave., New York, NY 10010. 216p., bibliog., index. ISBN 0-275-93189-7. $47.95. (Descriptors: Social Aspects, Ethnology, Anthropology) (Contributors to this volume: Douglas A. Feldman, Univ. of Miami School of Medicine; Sophie Day, London School of Economics; Paul Farmer, Harvard Univ.; Norris G. Lang, Univ. of Houston; William L. Leap, American Univ. in Washington, DC; S.C. McCombie, Univ. of Pennsylvania; Peter M. Nardi, Pitzer College; Juliet A. Niehaus, Wagner College; Michael D. Quam, Sangamon State Univ.; Christopher C. Taylor, Univ. of Chicago; Dooley Worth, New York Health and Hospitals Corp.)

This book looks at AIDS as a "cultural phenomenon." Most of the contributors are anthropologists who are interested in this aspect of AIDS research. Titles of some of the chapters are: "AIDS in cultural, historic, and epidemiologic context," "The sick role, stigma, and pollution," "AIDS and accusation: Haiti, Haitians, and the geography of blame," "Minority women and AIDS: culture, race, and gender," "Language and AIDS," "AIDS and obituaries: the perpetuation of stigma in the press," "Sex, politics, and guilt: a study of homophobia and the AIDS phenomenon," and "Postscript: Anthropology and AIDS." Although this a book from the anthropologist's viewpoint, it has a great deal of information for anyone who is seeking out social and political solutions to this devastating disease. It should be essential reading for all physicians and for all social scientists. The general public may gain something from the book but it is basically a research work. It is recommended for large public, medical, and academic libraries. (H. Robert Malinowsky)


[ AIDS BOOK REVIEW JOURNAL | UIC University Library ]

Last updated: 09/26/95
URL: http://www.uic.edu/depts/lib/aidsbkrv/