Center for End-of-Life Transition Research (CEoLTR)

Core Units

Mixed Methods Core

Director: Karen Kavanaugh, PhD, RN, FAAN

Co-Director: Sandy Burgener, PhD, APRN-BC, FAAN,

Support Staff: Veronica Angulo, Project Coordinator

Services Provided by this Core:

1. Provide consultation related to:

• General research design and data collection for mixed methods research
• Issues related to recruiting and retaining subjects for end-of-life and other sensitive research.
• Evaluation and adaptation of instruments to be used with specific age and ethnic groups at various phases of experiencing end of life
• Complex and advanced analysis strategies and statistics and data management services that include: qualitative data reduction, automated data entry and verification for large data sets.
• Ethical issues in conducting sensitive research

2. Provide programs and resources for Center investigators/affiliates and project staff including:

• Special interest groups
• Programs and seminars for the development of investigators and project staff with respect to methodological issues and end-of-life transition research
• Expansion of CRRVP Instrument Library to include both qualitative guides and quantitative measure relevant to end-of-life research.
• Guidelines for methodological issues related to end-of-life transition research, including recruitment and retention, assessing decisional capacity, developing and maintaining relationships with professional staff at clinical agencies, and tailoring data collection measures
• Interviewer training for end-of-life or other sensitive research
• Peer support strategies for investigators who conduct end-of-life or other sensitive research