The title of the study is Preimplantation Genetic Diagnosis: Couples' Decision Making at the Genetic and Reproductive Interface. The study is supported by grants from the National Institutes of Health (R03 NR010351 & K12HD055892) and the University of Illinois at Chicago College of Nursing Dean’s Fund. Your participation is strictly voluntary and confidential. Assurances for the protection of participants in this study has been received from the University of Illinois at Chicago Institutional Review Board protocol number 2008-0281.
This study is being done to learn more about the choices that couples who are at high risk for transmitting a genetic disorder make about using Preimplantation Genetic Diagnosis (PGD). Health care providers, such as nurses and physicians, are seeking to understand this experience to better provide support with this decision to other couples.
You may be eligible to participate in this study if you and your partner:
You and your partner will each be asked to participate in a private research interview and answer a short questionnaire. You can choose to complete a telephone or an email interview. The interview will take about one-to-two hours. During the interview, you will be asked to share your experience of making a decision to either accept or decline the use of PGD.
In an effort to thank each couple for their participation in the study, each couple will receive a $50 gift card.