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The Consortium for Citizens with Disabilities || Developmental Disabilities
Illinois Disability Agencies and Related Resources
Agencies of the Federal Government || Private Research Institutes || Disability Data & Statistics

The Consortium for Citizens with Disabilities (CCD) - CCD is a coalition of approximately 100 national disability organizations working together to advocate for national public policy that ensures the self determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. The organizations are listed below:

• Advancing Independence: Modernizing Medicare and Medicaid (AIMMM)
• AAN - American Academy of Neurology
• AAP - American Academy of Pediatrics
• AAPD - American Association of People with Disabilities
• AAPM&R - American Academy of Physical Medicine and Rehabilitation
• ACCSES - American Congress of Community Supports and Employment Services
• ACB - American Council of the Blind
• ACA - American Counseling Association
• ADTA - American Dance Therapy Association
• American Diabetes Association
• AFB - American Foundation for the Blind
• AMRPA - American Medical Rehabilitation Providers Association
• AMTA - American Music Therapy Association
• ANCOR - American Network of Community Options and Resources
• AOTA - American Occupational Therapy Association
• APTA - American Physical Therapy Association
• ASHA - American Speech-Language-Hearing Association
• ATRA - American Therapeutic Recreation Association
• AER - Association for Education and Rehabilitation of the Blind and Visually Impaired
• APSE - Association for Persons in Supported Employment
• AMCHP - Association of Maternal and Child Health Programs
• AUCD - Association of University Centers on Disabilities
  • AUCD Multicultural Council
• COPAA - Council of Parent Attorney and Advocates
• DREDF - Disability Rights Education and Defense Fund, Inc.
• DEC/CEC - Division for Early Childhood of the CEC
• Easter Seals
• Epilepsy Foundation
• Goodwill Industries International, Inc.
• HKNC - Helen Keller National Center
• HECSE - Higher Education Consortium for Special Education
• IRI - Inclusion Research Institute
• I-NABIR - Inter/National Association of Business, Industry and Rehabilitation
• IAPSRS - International Association of Psychosocial Rehabilitation Services
• IDA - International Dyslexia Association
• LDA - Learning Disabilities Association of America
• NAEH - National Alliance to End Homelessness
• NAAOP - National Association for the Advancement of Orthotics and Prosthetics
• NAON - National Association of Orthopaedic Nurses
• NAPSEC - National Association of Private Special Education Centers
• NARRTC - National Association of Rehabilitation Research and Training Centers
• NASN - National Association of School Nurses
• NASP - National Association of School Psychologists
• NASW - National Association of Social Workers, Inc.
• NASDSE- National Association of State Directors of Special Education
• NCLD - National Center for Learning Disabilities
• NCPSSM - National Committee to Preserve Social Security and Medicare
• NCPERID - National Consortium of Physical Education and Recreation for individuals with Disabilities
• NCCBH - National Council for Community Behavioral Healthcare
• NIB - National Industries for the Blind
• NICHCY - National Information Center for Children and Youth with Disabilities
• NISH - (formerly the National Industries for the Severely Handicapped
• NMSS - National Multiple Sclerosis Society
• NOSSCR - National Organization of Social Security Claimants' Representatives
• NOD - National Organization on Disability
• NRA - National Rehabilitation Association
• NRC - National Respite Coalition
• NSCLC - National Senior Citizens Law Center
• NTRS - National Therapeutic Recreation Society
• PVA - Paralyzed Veterans of America
• SSWAA - School Social Work Association of America
• SBAA - Spina Bifida Association of America
• TASH - Equity, Opportunity and Inclusion for People with Disabilities since 1975
• TED/CEC - Teacher Education Division of the Council for Exceptional Children
• T.II.C.A.N.N. - Title II Community AIDS National Network
• TSA - Tourette Syndrome Association, Inc.
• UCPA - United Cerebral Palsy Association

  Developmental Disabilities

• AAMR - American Association on Mental Retardation
• Arc-US - The Arc of the United States
• ASA - Autism Society of America
• Centers of Excellence by State Jump to site Alabama (Civitan International Research Center) Alaska (Center for Human Development) American Somoa (Pacific Basin Program) Arizona (University Center on Disabilities) Arkansas (Institute for Disability Studies) California (USC Children's Hospital of Los Angeles) California (Tarjan Center for Disabilities at UCLA) Colorado (JFK Partners) Connecticut (A.J. Pappanikou Center for Developmental Disabilities) Delaware (Center for Disabilities Studies) District of Columbia (Georgetown University Child Development Center) Florida (Mailman Center for Child Development) Georgia (Institute on Human Development and Disability) Guam Hawaii (Center on Disability Studies) Idaho (Center on Disabilities and Human Development) Illinois (Institute on Disability and Human Development) Indiana (Institute on Disability and Community at Bloomington) Indiana (Riley Child Development Center at Indianapolis) Iowa (Center for Disabilities and Development) Kansas (Schiefelbusch Institute for Life Span Studies) Kentucky (Interdisciplinary Human Development Institute) Louisiana (Human Development Center at New Orleans) Louisiana (Children's Center at Shreveport) Maine (Center for Community Inclusion) Maryland (Kennedy Krieger Institute) Massachusetts (The Eunice Kennedy Shriver Center at Waltham) Massachusetts (Institute for Community Inclusion at Boston) Michigan (Developmental Disabilities Institute) Minnesota (Institute on Community Integration) Mississippi (Institute for Disability Studies) Missouri (Institute for Human Development) Montana (The University of Montana Rural Institute) Nebraska (Munroe-Meyer Institute for Genetics and Rehabilitation) Nevada (Research and Educational Planning Center) New Hampshire (Institute on Disability) New Jersey (The Elizabeth M. Boggs Center on Developmental Disabilities) New Mexico (Center for Development and Disability) New York (Rose F. Kennedy UCE at the Bronx) New York (Strong Center at Rochester) New York (Westchester Institute for Human Development at Valhalla) North Carolina (Center for Development and Learning) North Dakota (North Dakota Center for Persons with Disabilities ) Ohio (Cincinnati Childrens Division of Developmental Disabilities) Ohio (Nisonger Center at Columbus) Oklahoma (Center for Interdisciplinary Learning and Leadership) Oregon (Center on Human Development at Eugene) Oregon (Oregon Institute on Disability & Development at Portland) Pennsylvania (Children's Seashore House of The Children's Hospital of Philadelphia) Pennsylvania (Institute on Disabilities at Temple University) Peurto Rico (Puerto Rico Institute on Developmental Disabilities) Rhode Island (Paul V. Sherlock Center on Disabilities) South Carolina (Center for Disability Resources) South Dakota (Center for Disabilities) Tennessee (Boling Center for Disabilities at Memphis) Tennessee (Child Development Center at Nashville) Texas (Texas Center for Disability Studies) Utah (Center for Persons with Disabilities) Vermont (Center on Disability and Community Inclusion) Virginia (Virginia Institute for Developmental Disabilities) Washington (Center on Human Development and Disabilities) West Virginia (Center for Excellence in Disabilities) Wisconsin (Waisman Center) Wyoming (Wyoming Institute for Disabilities (WIND))
• CEC - The Council for Exceptional Children
• Cerebral Palsy - Ask the Doctor, a resource for parents and families.
• The Council on Quality and Leadership in Supports for People with Disabilities (The Council)
• CDDC - Consortium of Developmental Disabilities Councils
• Exceptional Parent (EP) magazine - provides information, support, ideas, encouragement and outreach for parents and families of children with disabilities, and the professionals who work with them.
• Family Village - a global community that integrates information, resources, and communication opportunities on the Internet for persons with cognitive and other disabilities, for their families, and for those that provide them services and support.
• Fundación John Langdon Down
• Joseph P. Kennedy, Jr. Foundation
  Link to Developmental Disabilities Research Centers by State Jump to site Alabama (Civitan International Research Center) California (Mental Retardation Research Center at Los Angeles) Colorado (B. F. Stolinsky Research Laboratories) Connecticut (Yale Child Study Center) Florida (Mailman Center for Child Development) Kansas (Schiefelbusch Institute for Life Span Studies) Kansas (Smith Center at Kansas City) Maryland (Kennedy Krieger Institute) Massachusetts (The Eunice Kennedy Shriver Center at Waltham) Massachusetts (The Children's Hospital at Boston) New York (Rose F. Kennedy Center at the Bronx) New York (Institute for Basic Research in Developmental Disabilities) North Carolina (Mental Retardation & Developmental Disabilities Research Center) Pennsylvania (Children's Hospital of Philadelphia) Tennessee (John F. Kennedy Center for Research on Human Development) Texas (Baylor Mental Retardation Research Center) Texas (Centers for Neurological Research - NO WEBSITE) Washington (Center on Human Development and Disability) Wisconsin (Waisman Center)
• NACDD - National Association of Councils on Developmental Disabilities
• NAPAS - National Association of Protection and Advocacy Services
• NASDDDS - National Association for State Directors of Developmental Disabilities Services.
• NDSS - National Down Syndrome Society

  Illinois Disability Agencies and Related Resources:

  Developmental Disabilities

• American Association on Mental Retardation (AAMR) of Illinois
• The Arc of Illinois
• Autism Society of Illinois
• United Cerebral Palsy of Illinois
• Epilepsy Foundation of Greater Chicago.
• Illinois Spina Bifida Association
• The Illinois Council on Developmental Disabilities
• Access Living
• Progress Center
• Equip for Equality
• Illinois Department of Human Services
  

Agencies of the Federal Government

• The Access Board A federal agency committed to accessible design.
• Administration on Developmental Disabilities (ADD) is the U.S. Government organization responsible for implementation of the Developmental Disabilities Assistance and Bill of Rights Act of 2000, known as the DD Act. ADD, its staff and programs, are part of the Administration for Children and Families, of the U.S. Department of Health and Human Services.
• Agency for Health Care Research and Quality (AHRQ) Healthcare research
• Assistant Secretary for Planning and Evaluation (ASPE), Division of Disability, Aging and Long-Term Care Policy
• Bureau of Economic Analysis (BEA), U.S. Department of Commerce
• Centers for Disease Control and Prevention (CDC)
• Centers for Medicare and Medicaid Services. Previously called the Health Care Financing Administration (HCFA).
• Congressional Research Service provides access to a list of its publications.
• FedStats, Links to more than 100 US federal agencies providing data and statistics.
• Recent reports from the General Accounting Office (GAO)
• Library of Congress
• Social Security Administration (SSA) programs, Disability, Old Age Survivors Insurance (OASI), Supplemental Security Income (SSI).
• Thomas, comprehensive locator information about Congress' legislation.
• The U.S. Department of Justice ADA home page forms for filing ADA complaints, ADA regulations and technical assistance materials, ADA enforcement status reports, ADA settlements and consent decrees.
• United States Office of Management and Budget (OMB) latest Federal budget.

  State Information

• A list of all states' DD agencies
• Association of University Centers on Disabilities (AUCD) formerly the American Association of University Affiliated Programs (AAUAP).
• National Association of Councils on Developmental Disabilities (NACDD)
• National Association of Protection and Advocacy Associations (NAPAS)
• National Association of State Budget Officers
• National Association of State Directors of Developmental Disabilities Services (NASDDDS) is the national organization for Directors of State Mental Retardation/Developmental Disabilities (MR/DD) agencies; conducts policy research.
• National Association of State Medicaid Directors
• National Association of State Mental Health Program Directors (NASMHPD) National Research Institute. Bibliographic information; data on mental health policy, financing.
• National Conference of State Legislatures (NCSL), Information on state budget and policy issues; legislation.
• National Governors Association (NGA), Executive priorities in the states; budget issues.

  Private Research Institutes

• Center on Budget and Policy Priorities
• Economic Policy Institute (EPI) on-line publications related to health policy and managed care including The State of Working America, 1998-99.
• Mathematica Policy Research organization.

  Disability Data & Statistics

• Access to Disability Data @ InfoUse - data resources including chartbooks, statistical charts, tables and surveys.
• Center on Human Policy, Syracuse University
• Disability Statistics Center - disseminates statistical information on disability and the status of people with disabilities in American Society.
• Institute on Community Integration, University of Minnesota
• National Center for the Dissemination of Disability Research - conducts research, dissemination and utilization activities, demonstration projects, and technical assistance.
• The State of the States in Developmental Disabilities - Research on spending for developmental disability services in each of the states and the U.S. In 2002, IL ranked 42 nd in terms of spending on community services (settings for 15 or fewer individuals). This project is headquarted at the University of Colorado. Principal Investigator: Dr. David Braddock, Executive Director, Coleman Institute for Cognitive Disabilities and Associate Vice President, University of Colorado System.

Institute on Disability and Human Development
Department of Disability and Human Development
College of Applied Health Sciences
1640 W. Roosevelt Road, MC 626
Chicago IL 60608

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