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Bibliography and Resources on Family Caregivers and Adults with Developmental Disabilites

Bigby, C. (1997). Parental substitutes? The role of siblings in the lives of older people with intellectual disability. Journal of Gerontological Social Work, 29(1), 3-21.

Bigby, C. (1996). Transferring responsibility: The nature and effectiveness of parental planning for the future of adults with intellectual disability who remain at home until mid-life. Australian Society for the Study of Intellectual Disability, 21(4), 295-312.

Braddock, D. (1999). Aging and developmental disabilities: demographic and policy issues affecting American families. Mental Retardation, 37, 155-161.

Emick, M. A., & Hayslip, B. (1999). Custodial grandparenting: stresses, coping skills, and relationships with grandchildren. International Journal of Aging and Human Development, 48(1), 35-61.

Essex, E.L., Seltzer, M.M., & Krauss, M.W. (1999). Differences in coping effectiveness and well-being among aging mothers and fathers of adults with mental retardation. American Journal on Mental Retardation, 104(6), 545-63.

Freedman, R.I., Krauss, M.W., & Seltzer, M.M.. (1997) Aging parents= residential plans for adults children with mental retardation. Mental Retardation, 35(2), 114-23.

Evenhuis H.M. (1997). Medical aspects of ageing in a population with intellectual disabilities: III. Mobility, internal conditions and cancer. Journal of Intellectual Disability Research, 41, 8-18.

Evenhuis, H., Henderson, C.M., Beange, H., Lennox, N., Chicoine, B., & Working Group. (2000). Healthy Ageing - Adults with Intellectual Disabilities: Physical Health Issues. Geneva, Switzerland: World Health Organization.

Fujiura, G.T. (1998). Demography of family households. American Journal of Mental Retardation, 103, 225-235.

Grant-Griffin, L (1995). Best practices: Outreach strategies in multicultural communities. Albany, NY: NYS Office of Mental Retardation and Developmental Disabilities.

Greenberg, J.S., Seltzer, M.M., Krauss, M.W. & Kim, H. (1997). The differential effects of social support on the psychological well-being of aging mothers of adults with mental illness or mental retardation. Family Relations, 46, 383-94.

Hayden, M.F. (1998). Mortality among people with mental retardation living in the United States: Research review and policy application. Mental Retardation, 36, 345-359.

Hayden, M.F., & Heller, T. (1997). Support, problem-solving/coping ability, and personal burden of younger and older caregivers of adults with mental retardation. Mental Retardation, 35(5), 364-72.

Heller, T., & Factor, A. (1991). Permanency planning for adults with mental retardation living with family caregivers. American Journal on Mental Retardation, 96, 163-176.

Heller, T, Hsieh, K. & Rowitz, L. (1997). Maternal and paternal caregiving of persons with mental retardation across the lifespan. Family Relations, 46, 407-15.

Heller, T., Miller, A.S., & Factor, A. (1997). Adults with mental retardation as supports to their parents: Effects on parental caregiving appraisal. Mental Retardation, 35, 338-346.

Janicki, M.P., & Dalton, A.J. (2000). Prevalence of dementia and impact on intellectual disability services. Mental Retardation, 38, 277-289.

Janicki, M.P., Dalton, A.J., Henderson, C.M., & Davidson, P.W. (1999). Mortality and morbidity among older adults with intellectual disability: Health services considerations. Disability and Rehabilitation, 21(5/6), 284-294.

Janicki, M.P., McCallion, P., Grant-Griffin, L., & Kolomer, S.R., (2000). Grandparent carergivers I: Characteristics of the grandparents and the children with disabilities they care for. Journal of Gerontological Social Work, 33(3), 35-56.

Kaufman, A., Adams, J., & Campbell, V. (1991). Permanency planning by older parents who care for adult children with mental retardation. Mental Retardation, 29, 293-300.

Kolomer, S. R. (2000). Kinship foster care and its impact on grandmother caregivers. Journal of Gerontological Social Work, 33, 85-102.

Kolomer, S.R., McCallion, P., & Janicki, M.P. (in press). African-American Grandmother Carers of Children with Disabilities: Predictors of Depressive Symptoms. Journal of Gerontological Social Work,37(3/4).

Krauss, M.W., Seltzer, M.M., Gordon, R., & Friedman, D.H. (1996). Binding ties: The roles of adult siblings of persons with mental retardation. Mental Retardation, 34, 83-93.

McCallion, P. (1993). Social worker orientations to permanency planning with older parents caring at home for family members with developmental disabilities. Unpublished dissertation, University at Albany.

McCallion, P., & Grant-Griffin, L. (2000). Redesigning services to meet the needs of multi-cultural families. In M.P. Janicki, & E. Ansello, (Eds.). Community Supports for Older Adults with Lifelong Disabilities. Baltimore: Paul H. Brookes.

McCallion, P., & Janicki, M.P. (1997). Area agencies on aging: Meeting the needs of persons with developmental disabilities and their aging caregivers. Journal of Applied Gerontology, 16, 270-284.

McCallion, P., Janicki, M.P., & Grant-Griffin, L. (1997). Exploring the impact of culture and acculturation on older families caregiving for persons with developmental disabilities. Family Relations, 46, 347-357.

McCallion, P., Janicki, M.P., Grant-Griffin, L., & Kolomer, S.R., (2000). Grandparent Caregivers II: Service needs and service provision issues. Journal of Gerontological Social Work, 33(3), 57-84.

McCallion, P., & Kolomer, S.R. (2001). Caregiving grandfathers of children with developmental disabilities. Paper presented at American Association on Mental Retardation National Conference, Denver, Colorado.

McCallion, P., & Tobin, S. (1995). Social worker orientations to permanency planning by older parents caring at home for sons and daughters with developmental disabilities. Mental Retardation, 33(3), 153-162.

McCallion, P., & Toseland, R.W. (1993). An empowered model for social work services to families of adolescents and adults with developmental disabilities. Families in Society, 74, 579-589.

Roberto, K.A. (Ed.). (1993). The elderly caregiver: caring for adults with developmental disabilities. Newbury Park, CA: Sage.

Scheerenberger, R.C. (1987). A history of mental retardation: A quarter century of promise. Baltimore:Brookes.

Seltzer, G., Begun, A., Magan, R., & Luchterhand, C. (1993). Social supports and expectations of family involvement after out of home placement. In E. Sutton, T. Heller, A. Factor, B. Seltzer & G. Hawkins (Eds.). Older adults with developmental disabilities. (pp.123-140). Baltimore: brookes.

Seltzer, G., Begun, A., Seltzer, M.M., & Krauss, M.W. (1991). The impacts of siblings on adults with mental retardation and their aging mothers. Family Relations, 40, 310-317.

Seltzer, M.M., Greenberg, J.S., & Krauss, M.W. (1995). A comparison of coping strategies of aging mothers of adults with mental illness or mental retardation. Psychology and Aging, 10, 64-75.

Seltzer, M.M., Greenberg, J.S., Krauss, M.W. & Hong, J. (1997). Predictors and outcomes of the end of co-resident caregiving in aging families of adults with mental retardation or mental illness. Family Relations, 46, 13-22.

Seltzer, M.M., & Krauss, M.W. (1994). Aging parents with coresident adult children: The impact of lifelong caregiving. In M.M. Seltzer, M.W. Krauss, & M.P. Janicki (Eds.). Lifecourse perspectives on adulthood and old age (pp. 3-18).Washington, DC: American Association on Mental Retardation.

Smith, G.C. & Tobin, S.S. (1993). Casemanagers perceptions of practice with older parents of adults with lifelong disabilities. In K.A. Roberto (Ed.). (1993). The elderly caregiver: caring for adults with developmental disabilities. Newbury Park, CA: Sage.

Smith, G.C. & Tobin, S.S. (1989). Permanency planning among older parents of adults with lifelong disabilities. Journal of Gerontological Social Work, 14, 35-39

Walsh, P.N., Conliffe, C., & Birkbeck, G. (1993). Permanency planning and maternal well-being: A study of caregivers of people with intellectual disability in Ireland and Northern Ireland. The Irish Journal of Psychology, 14, 176-188.

Zitlin, A.G. (1986). Mentally retarded adults and their siblings. American Journal of Mental Deficiency, 91, 217-225

Courtesy - P. McCallion, University at Albany

updated 8 May 2002