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Resources
on Aging with Intellectual / Developmental Disabilities
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| Fall 2002 Publications List |
 |
General Aging with Developmental
Disabilities
We
invite you to learn more about the RRTCADD’s research,
training, technical assistance, and dissemination activities. Please visit our
website at www.uic.edu/orgs/rrtcamr
or contact us
at:
312-413-1860
(V); 1-800-996-8845 (V);
312-413-0453
(TTY); 1-800-526-0844 (IL Relay);
312-996-6942 (Fax); email: rrtcamr@uic.edu
Funded by the United States Department of Education, Office of Special
Education, and Rehabilitative Services,
National Institute on Disability and Rehabilitation Research,
Cooperative Agreement #H133B980046
New! Health of women with intellectual disabilities, (2002). Walsh, P.N. & Heller,
T.
This book presents the latest research
on age-related health issues for women with intellectual disabilities. Chapters
written by leading international researchers and practitioners address a
variety of concerns including later life health risks, reproduction and
sexuality, mental health, and health promotion. Complementary chapters discuss
innovative health education and health support interventions and recommend
progressive policies to improve health care for women with intellectual
disabilities.
ISBN: 1-4051-0103-2 COST
PER UNIT: $44.95
Order directly
from Blackwell Publishing at: www.blackwellpublishing.com/
or Phone: (781) 388-8250
New! Aging with mental retardation: Oral health for older individuals with
disabilities, (2001). Farsai, P.,& Calabrese, J.
This fact sheet discusses oral
health care for older people with disabilities. It explains the conditions
leading to oral health problems for people with disabilities and specifies what
to look for in dental treatment and in choosing a dentist. The fact sheet also
discusses barriers to accessing proper oral health care and provides
recommendations for maintaining proper oral hygiene as people with disabilities
age.
ITEM NO: 500.023 COST
PER UNIT: $3.00 per bound copy.
Can
be downloaded at no charge from: www.uic.edu/orgs/rrtcamr.
New! Exercise and nutrition health education curriculum for
adults with developmental disabilities, (2001). Heller, T., Marks, B.A., &
Ailey, S.H.
This innovative curriculum is a
12-week interactive program specifically designed for individuals with
developmental disabilities (DD). Each week, participants enjoy three 1-hour
sessions, where they are encouraged to understand their attitudes toward
health, food and exercise; to gain skills and knowledge about healthy eating
and exercising; to identify food and exercise preferences; to participate in
food preparation and exercise activities; and, to locate places in their
community where they can exercise regularly. Strategies that are woven
throughout this curriculum include making choices, self-determination,
self-efficacy, self-advocacy, and rights and responsibility, along with
problem-solving techniques and conflict resolution. Direct staff or health
professionals can easily adapt the curriculum to meet the unique needs and
capacities of individuals with DD and their agencies. The RRTC-ADD can provide
regional train-the-trainer sessions for agencies or groups to familiarize
facilitators with the curriculum philosophy, goals and training materials.
Training session(s) simulate experiences similar to the actual health education
program. Trainers-in-training are encouraged to complete exercises that they
will ask future participants to do.
ITEM NO: 520.011 COST
PER UNIT: $65.00 (Softcover)
ITEM NO:
520.010 COST PER UNIT:
$25.00 (CD-ROM)
New! International association for the scientific study of
intellectual disabilities (IASSID) papers,(2001). Journal of Applied Research in Intellectual
Disabilities, Blackwell Science: London.
This
special issue contains the research reports developed by the IASSID Special
Interest Group on Aging in collaboration with the World Health Organization to
promote the healthy aging of adults with intellectual disabilities worldwide.
The papers address age-related physical health changes, bio-behavioral and
women’s health issues, policy and practice recommendations and include a
summative report. The issue has an introduction by Matthew Janicki plus papers
on friendships and residential supports.
ITEM NO.: 610.009 COST
PER UNIT: $15.00
Achieving a beneficial
fitness: A program and a philosophy in mental retardation: Contemporary issues
in health, Vol.1, No. 1,(2000).
Rimmer, J. American Association on Mental Retardation (AAMR).
This book discusses the
benefits of health promotion activities for individuals with mental retardation.
It includes guidelines on developing innovative health and fitness programs.
ISBN 0-940898-71-3 COST
PER UNIT: $11.95 ($8.95 AAMR members)
Order directly from the publisher by calling the AAMR at (301) 604-1340,
or by accessing their web site at: www.aamr.org.
Ageing and
intellectual disabilities: Improving longevity and promoting healthy aging, (2000). Ageing and
Intellectual Disabilities Special Interest Research Group (SIRG) of The
International Association for the Scientific Study of Intellectual Disability
(IASSID).
This series
of reports is the outcome of an international initiative to promote the
longevity and healthy aging of adults with intellectual disabilities that
was jointly organized by the IASSID and the World Health Organization.
Work groups of international researchers in aging and intellectual disabilities
synthesized the latest research and developed recommendations that produced
five reports (will be opened in a new window): Physical
Health Issues, Biobehavioral
issues, Women’s
Health, Ageing
and Social Policy, and a Summative
Report.
ITEM NO.: 610.008 COST
PER UNIT: $25.00 (set of 5 bound reports)
Can be viewed at no charge from the links above
Aging with
developmental disabilities: Women's health issues, (1999). Brown, A. & Murphy, L.
This fact
sheet provides information on age-related health issues for women with
developmental disabilities based on the research to date. The fact sheet
addresses the most commonly asked questions by women who are aging (e.g.
menopause, osteoporosis, and heart disease) and how to stay healthy. The fact
sheet includes a list of related resources for women who want more information.
ITEM NO.: 500.015 COST
PER UNIT: $3.00 for a bound copy;
Can
be downloaded at no charge from: www.uic.edu/orgs/rrtcamr.
Hearing changes in aging
people with mental retardation, (1999). Bagley, M., & Mascia, J.
This fact sheet provides answers
to frequently asked questions about age-related hearing loss, especially for
people with developmental disabilities. It contains the information families and
service providers need to identify possible hearing loss and to support older
adults who have this condition.
ITEM NO.: 500.014 COST
PER UNIT: $3.00 for a bound copy;
Can
be downloaded at no charge from: www.uic.edu/orgs/rrtcamr.
Mental retardation and
physical health, (1999).
Rimmer, J.H. In A.J. Goreczny & M. Hersen (Eds.), Handbook of pediatric and adolescent health psychology, (401-411).
Boston, MA: Allyn & Bacon.
ISBN: 0-205-15624-X COST
PER UNIT: $85.50
Order directly from Allyn & Bacon at: www.ablongman.com or call at: (800) 666-9433
Dementia, aging, and
intellectual disabilities: A handbook, (1998). Janicki, M.P. & Dalton, A.J. (Eds.).
This text examines the impact of
Alzheimer's disease and other dementias on people with mental retardation from
an applied and practical perspective. It provides an up-to-date review of
current knowledge on the diagnosis, assessment, treatment, care management, and
care practices of dementias for people with mental retardation.
ISBN: 0-87630-916-3 COST
PER UNIT: $35.00 + Shipping (Paperback)
Order directly from Taylor and Francis Routledge.
Tel: (800) 634-7064 ; (800) 248- 4724 (TTY). Email: bookorders@taylorandfrancis.com
McCracken
intervention matrix: Guidelines for carers to help older adults with mental
retardation maintain optimal
functioning, (1997).
McCracken, A., & Lottman, T.
This
guidebook assists carers to help older people with mental retardation maintain
optimum functioning in nine areas: eating and nutrition; elimination; motor
skills; awareness and thinking; communication; relationships; protection and
assertiveness; sexual awareness and behavior; and assistance and acceptance.
Each of the nine modules includes an overview of age-related changes,
guidelines for detecting changes in function, and easy-to-implement activities
to help individuals maintain optimum functioning. The guidebook also contains
an overview of the aging process and a resource directory for additional
information on aging with mental retardation.
ITEM NO.: 500.009 COST
PER UNIT: $20.00
Aging,
mental retardation and physical fitness, (1997). Rimmer,
J.
This fact sheet provides an
overview of what physical fitness is and how it relates to older people with
mental retardation. It includes helpful guidelines for family members, support
people, service providers and others interested in starting a program for older
individuals with mental retardation.
ITEM NO.: 500.011 COST PER UNIT: $3.00 for a
bound copy
Can
be downloaded at no charge from: www.uic.edu/orgs/rrtcamr.
Aging with developmental
disabilities: Changes in vision, (1996). Flax,
M.E.,& Luchterhand, C.
This fact
sheet provides answers to the following questions: What are the typical changes
in vision as people age? How will vision loss affect the adult with developmental
disabilities? What can be done to make the best of the vision someone has? What
information is helpful to bring to an eye care specialist? What should you ask
at the eye exam? Where can a person get additional information and assistance
regarding vision problems?
ITEM NO.: 500.003 COST
PER UNIT: $3.00 for a bound copy;
Can
be downloaded at no charge from: www.uic.edu/orgs/rrtcamr.
Promoting health in
adults with Down syndrome, (1996). Chicoine, B., &
McGuire, D.
This paper addresses health and
psychosocial issues for adults with Down syndrome. It is based on the authors'
clinical experience with more than 500 people at the Adult Down Syndrome Clinic
based at at a suburban Chicago hospital. Issues of lifestyle, screening and
evaluation, immunization, mental health, and health education are discussed.
ITEM NO.: 520.005 COST
PER UNIT: $3.00
Health, fitness, and quality
of life for older adults with developmental disabilities, (1996). Hawkins, B.A. A chapter in Tedrick, T.
(Ed.), Older Adults with Developmental Disabilities and Leisure
ISBN: 789000237 COST
PER UNIT: $74.95
The Haworth Press, Inc., Binghampton, NY. www.haworthpressinc.com.
JOURNAL
ARTICLES: ($3.25 EACH)….
New!
520.021 Barriers and supports for exercise participation among adults with down syndrome, (2002). Heller, T., Hsieh, K., & Rimmer, J. Journal of Gerontological Social Work, 38(1/2), 161-178.
New!
520.018 Health characteristics and health services utilization in older
adults with intellectual disability living in community residences, (2002).
Janicki, M.P., Davidson, P.W., Henderson, C.M., McCallion, P., Taets, J.D.,
Force, L.T., Sulkes, S.B., Frangenberg, E., & Ladrigan, P.M. Journal of
Intellectual Disability Research, 46(4), 287-298.
520.017 Physical
activity, dietary intake, and the insulin resistance syndrome in nondiabetic
adults with mental retardation, (2002). Draheim, C.C., Williams, D.P., & McCubbin, J.A. American
Journal on Mental Retardation, 107(5), 361-375.
New!
520.016 Women with developmental disabilities: Health and aging, (2002). Brown,
A.A., & Gill, C.J. Current Women’s Health Reports, 2, 219-225.
New!
520.014 Differences in cardiovascular disease risk between nondiabetic
adults with mental retardation with and without Down syndrome, (2002). Draheim,
C., McCubbin, J.A., & Williams, D.P. American Journal on Mental
Retardation, 107(3), 201-211.
New!
520.013 Determinants of
exercise in adults with cerebral palsy, (2002). Heller, T., Ying, G., Rimmer, J.H., & Marks, B.A. Public
Health Nursing, 19(3), 223-231.
New!
510.016 A prospective study of
menopause in women with Down syndrome, (2001). Seltzer, G.B., Schupf,
N., & Wu, H.S. Journal of Intellectual Disability Research, 45, 1-7.
New!
510.015 Risk factors for injuries
and falls among adults with developmental disabilities, (2001).
Hsieh, K., Heller, T., & Miller, A.B. Journal of Intellectual Disability
Research, 45, 76-82.
510.014 Prevalence of dementia and
impact on intellectual disability services, (2000). Janicki, M.P.
& Dalton, A.J. Mental Retardation, 38, 277-289.
510.017 Overview of
health issues of older women with intellectual disabilities (2000).
Gill, C.J., & Brown, A.A. Aging and Developmental Disability: Current
Research, Programming, and Practice Implications (Eds. Hammel, J. & Nochajski, S.) Haworth Press, Inc., 23-36.
500.019 Disabilities and health
limitations, (2000). Rimmer, J.H. In Group fitness instructor manual. ACE’s guide for fitness professionals (226-246).
San Diego: American Council on Exercise.
500.022 Effects of pacing vs. nonpacing on a one-mile
walk test in adults with mental retardation, (2000). Kunde, K. &
Rimmer, J.H. Adapted Physical
Activity Quarterly, 17,
413-420.
500.017 Health
promotion for persons with disabilities: The emerging paradigm shift from
disability prevention to prevention of secondary conditions, (1999). Rimmer, J.H. Physical Therapy, 79, 495-502.
520.013 Distribution of apolipoprotein E genotypes in
Fragile X Syndrome and Batten disease, (1999). Zhong, N., Ju, W.,
Broawn, W.T., Ye, L-L, Jenkins, E.C., & Schupf. American Journal of
Medical Genetics, 84, 309-310.
500.009 Physical activity patterns of African-American women with a
severe physical disability, (1999),
Rimmer, J.H., Rubin, S.S., Braddock, D., & Hedman, G. Medicine and
Science in Sports and Exercise, 31, 613-618.
520.008 Overweight
prevalence in persons with Down syndrome, (1998).
Rubin, S.S., Rimmer, J.H., Chicoine, B., Braddock, D., & McGuire, D.E. Mental
Retardation, 36(3) 175-181.
800.005 The nature of leisure in the
lives of older adults with intellectual disability, (1998).
Rogers, N.B., Hawkins, B.S., & Eklund, S.J. Journal of Intellectual
Disability Research, 42(2), 122-130.
800.006 Validity and
reliability of the Leisure Assessment Inventory, (1998). Hawkins, B.A., Ardovino, P., & Hsieh, C. Mental Retardation, 36(4),
303-313.
800.008 Health,
fitness, and quality of life for older adults with developmental disabilities, (1997). Hawkins, B.A. Activities, Adaptation, and Aging,
21(3), 29-35.
500.013 Longevity of a
woman with Down syndrome: A case study, (1997). Chicoine, B.,
& McGuire, D.,Mental Retardation, 35(5), 477-479.
500.012 "Self-talk"
in adults with Down syndrome, (1997).
McGuire, D., Chicoine, B.A.,& Greenbaum, E. Disability Solutions,
2(2), 1,3-5.
510.010 Depression and
dementia in aging adults with Down syndrome: A case study approach, (1997),
Sung, H., Hawkins, B.A., Eklund, S.J., Kim, K.A., Foose, A., May, M.E., &
Brittain Rogers, N. Mental Retardation, 35(1), 27-38.
520.007 Depressive
disorders in adults with Down syndrome, (1996). McGuire, D., &
Chicoine, B. The Habilitative Mental Healthcare Newsletter, 15(1), 1-7.
520.006 Cardiorespiratory
capacity of individuals with mental retardation including Down syndrome, (1996).
Fernhall, B., Pitetti, K.H., Rimmer, J.H., et al. Medicine and Science in
Sports and Exercise, 28, 366-371.
500.008 Research
on physical activity and disability: An emerging national priority, (1996).
Rimmer, J.H., Braddock, D., & Pitetti, K.H. Medicine and Science in
Sports and Exercise, 28(8), 1366-1372.
510.009 Practice
guidelines for the clinical assessment and care management of Alzheimer's
disease and other dementias among adults with intellectual disability, (1996).
Janicki, M.P., Heller, T., Seltzer, G.B., & Hogg, J. Journal of
Intellectual Disability Research, 40(4), 374-382.
500.007 Discrepancy analysis and a proposal for service
provision: Case history of an older individual with Down syndrome, (1995).
May, M.E., Hawkins, B.A., Eklund, S.J., Kim, K., Brattain Rogers, N., &
Sung, H. Therapeutic Recreation Journal, 29(4), 337-343.
520.004 Comparison of body composition between German
and American adults with mental retardation, (1995). Frey, B., & Rimmer, J.H. Medicine and Science
and Exercise, 27(10), 1439-1443.
520.003 Health characteristics and behaviors of adults
with mental retardation residing in three living arrangements, (1995).
Rimmer, J.H., Braddock, D., & Marks, B. Research in Developmental
Disabilities, 16(6), 489-499.
520.002 Cardiovascular risk factor levels in adults
with mental retardation, (1994).
Rimmer, J.H., Braddock, D., & Fujiura, G. American Journal on Mental
Retardation, 98(4), 510-518.
520.001 Congruence of three risk indices for obesity in
a population of adults with mental retardation, (1994).
Rimmer, J.H., Braddock, D., & Fujiura, G. Adapted Physical Activity
Quarterly, 11, 396-403.
500.006 Correlates of self-reported leisure among
adults with mental retardation, (1993).
Hawkins, B.A., & Freeman, P.A. Leisure Sciences, 15(2), 131-147.
500.005 Terminal
illness, aging and developmental disability: A therapeutic art intervention, (1992).
Harlan, J.E., & Hawkins, B.A. Therapeutic Recreation Journal, 26(3),
49-52.
New! Overcoming the obstacles to making future plans: A training curriculum for adults with developmental
disabilities and their families, (2002). Debrine, E., Heller, T., Caldwell, J., Lopez,E., Factor , A , & Ennis., D
This curriculum equips families and their adult relative with a disability with the communication skills and information to jointly plan for the future.
Participants learn how to overcome the emotional and systematic barriers to planning with the support of peer mentors who have made plans. They prepare
a letter of intent that lays out their dreams for the future and identifies the steps required to transform this dream into a reality. This state-of-the-art approach
to future planning was developed, implemented and evaluated by the RRTCADD. It is an excellent resource for agencies, family organizations and advocacy groups.
ITEM NO: 100.018 COST
PER UNIT: $50.00 (Softcover)
ITEM NO: 100.017
COST PER UNIT: $25.00 (CD-ROM)
New! Future planning resource guide for
families and adults with developmental disabilities in Illinois, (2002).
Caldwell, J., Lopez, E., DeBrine, E., Factor, A., Heller, T., & Ennis, D.
This
guide helps families navigate the maze of adult services and supports for
individuals with developmental disabilities. It responds to families’ need for
a centralized source of information that describes adult services and how to
access them. Content includes an overview of the service system and information
on legal and financial planning, vocational and residential services, community
supports, recreation and leisure opportunities, transportation, and advocacy.
Information is in a user-friendly, question-and-answer format that was
recommended by families. The guide is a template that other communities can
follow in providing information on local services.
Person-centered planning for later life: Death and
dying - A curriculum for adults with mental retardation, (2000). Sterns, H.L., Kennedy, E.A., & Sed, C.M.
This
training curriculum helps adults with mental retardation understand death,
dying and loss. It covers the concept of death; experiencing and coping with
grief, mourning, comfort, and support; and death-related rituals (visitations and
funerals). The curriculum consists of five in-class
lessons and one field trip, which emphasize active participation
through both verbal and visual presentation of materials. The instructor's
guide provides a script for each lesson and includes guidelines for
planning and administering each lesson. Each participant has a
student notebook that accompanies the instructor's training
curriculum. Each participant chooses a support person to help him/her review
the lessons and complete assignments.
ITEM NO.: 100.014 COST
PER UNIT: $25.00 for
Instructor's Guide and Student Notebook
(Additional
Student Notebooks are $12.50 each).
Making choices as we age: A peer training program, (1996). Heller, T., Preston, L., Nelis, T., Brown,
A., & Pederson, E.
This is a
curriculum for training persons with disabilities and their co-trainers how to
teach other adults with mental retardation about: choice making, rights and
responsibilities, how to make healthy choices, and things to do in their free
time. The Trainer's Guide uses a “train-the-trainer” approach
so the persons with disabilities who are trainers and their co-trainers can
learn how to teach effectively and how to administer each module. The Coordinator's
Guide provides guidelines for administering the training program and
for building support for peer trainers and the other participants who they, in
turn, train.
ITEM NO.: 100.004 COST
PER UNIT: $55.00 for Trainer's Guide and Coordinator's Guide
(Additional
Trainer's Guides are $25.00 each).
Person-centered planning for later life: A curriculum
for adults with mental retardation,
(1993). Sutton, E., Heller, T., Sterns, H.L., Factor, A., & Miklos, S.
This
research-based curriculum enables adults with mental retardation to actively
plan for their later years by teaching aging concepts and choice making skills.
The 20-week training, which includes a student notebook, provides classroom and
community experiences for making choices regarding healthy aging, free-time
activities, work and retirement, and improving living arrangements.
ITEM NO.: 100.002 COST
PER UNIT: $55.00 for Curriculum and Trainer's Guide
(Available
in English, Dutch and German)
Voices that count training package (Videotape, Audio
Cassette, Presenter's Guide), (1993). Pederson, E., & Chaikin, M.
Voices
That Count prepares people with developmental disabilities to
present to boards, committees and other decision-making groups about how to
involve people with developmental disabilities. It empowers people to become
part of the decision-making process that affects their own lives. Through Voices
That Count, people with developmental disabilities learn how to
approach and present to professional and community organizations about the
leadership roles and contributions people with developmental disabilities can
make. Speakers will learn how to give boards and committees ideas for
recruiting, supporting, and building partnerships with people with
developmental disabilities.
ITEM NO.: 100.001 COST
PER UNIT: $85.00
JOURNAL
ARTICLES: ($3.25 EACH)….
New!
100.020 Building
community coalitions with people with disabilities and their families: An
empowerment approach, (2001). Keys,
C.B., & Factor, A.R. Journal of Prevention & Intervention in the
Community, 21(2), 91-112.
100.016 Later-life
planning: Promoting knowledge of options and choice-making, (2000). Heller, T., Miller, A., Hsieh, K., & Sterns, H. Mental
Retardation, 38(5), 395-406.
100.010 Including
self-advocates in community leadership, (1997).
Pederson, E. Disability Solutions, 2(4), 1,3-9.
100.009 Impact of person-centered later life
planning training program for older adults with mental retardation, (1996).
Heller, T., Factor, A., Sterns, H., & Sutton, E. Journal of
Rehabilitation, 62(1), 77-83.
100.008 Guidelines from the consumer: Improving
consumer involvement in research and training for persons with mental
retardation, (1996).
Heller, T., Pederson, E., & Miller, A. Mental Retardation, 34(3),
141-148.
100.007 An exploratory analysis of leisure and life
satisfaction of aging adults with mental retardation, (1993). Hawkins, B.A. Therapeutic Recreation Journal,
27(2), 98-109.
100.006 "Retirement" for older persons with
developmental disabilities, (1992). Sutton, E., Sterns, H.L., &
Roberts, R.S, Generations, 16, 63-64.
100.005 An exploration of adaptive skills and leisure
activity of older adults with mental retardation, (1991). Hawkins, B.A., Therapeutic Recreation
Journal, 25(4), 9-27.
New! Adolescents and adults with autism:
Recommended resources from families,
Report #4. (2002), Krauss,
M.W., Seltzer, M.M., Greenberg, R., Orsmond, G.I., & Magana, S.
This
report contains the books, videos, and internet web sites that helped families
learn more about their son or daughter’s autism spectrum disorder. Families
recommended these resources in a study of more than 400 parents caring for a
child with autism spectrum disorder.
ITEM NO: 530.004 COST PER UNIT: $5.00
Can
be downloaded at no charge from: www.uic.edu/orgs/rrtcamr.
New! Adolescents and adults with autism:
Reflections from adult siblings who have a brother or sister with autism
spectrum disorder, Report #3. (2002), Krauss,
M.W., Seltzer, M.M., Greenberg, R., Orsmond, G.I., & Magana, S.
This
report presents siblings’ perspectives on having a brother or sister with
autism. It is based on a study of caregiving that included more than 400
families. Quotes from more than 200 adult siblings provide insight into their
experiences over the life course. Topics include sibling relationships,
community acceptance, positive and negative experiences of having a sibling
with a disability, future expectations, and advice to parents and to teenage
siblings.
ITEM NO: 530.003 COST PER UNIT: $5.00
Can
be downloaded at no charge from: www.uic.edu/orgs/rrtcamr.
New! Adolescents and adults with autism, Report 1: A book of quotes: Shared e