Rehabilitation Research Training Center on Aging with Intellectual and Developmental Disabilities (RRTCADD)
Department of Disability and Human Development (DHD)
College of Applied Health Sciences
University of Illinois at Chicago (UIC)
1640 West Roosevelt Road, M/C 626
Chicago, Illinois 60608-6904
FAX 1-312-996-6942
TTY 1-312-413-0453
Clearinghouse 800-996-8845 (V), 800-526-0844 (Chicago Relay Access)

Giorgio Albertini, MD Consultant He is Director of the Child, Adult and Aging Developmental Center in Rome at casa di Cura San Raffaele. He is a pediatric neurologist with specialization in I/DD. Email : carla.albertini@sanraffaele.it    Telephone : 011-39-06-660581 (Italy)    Fax : 011-39-06-660583 (Italy)

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Karen N Batty, MS, RN, ANP Research Assistant, Adult Nurse Practitioner Karen Batty MS, RN, ANP is a research assistant for the Vitamin E Study. She is a PhD Student in the School of Public Health at UIC. She is also an Adult Nurse Practitioner. Email : Karen_N_Batty@rush.edu    Telephone : 312-942-6262 Mailing Address

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Allison (Lisa) Brown Project Coordinator She is a PhD student at UIC School of Public Health, and has worked in the developmental disability field for 14 years. She provides technical assistance and training to local agency staff (serving as the Chicago ARC Fellow). She is a member of the Women's Research Advisory Committee, Howard Brown Health Center, advocating for and conducting research on health needs of bisexual/lesbian women with disabilities. Her research interests include health concerns and experiences of women with disabilities, qualitative research approaches, LGBT health issues in disability, and cross-disability advocacy for women. Email : Lisab@uic.edu    Telephone : 312-413-1588 Mailing Address

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Joseph Caldwell, MS Project Coordinator He is doctoral student in Disability Studies in DHD with an interest in consumer direction and family support. While completing his Master’s degree, he received the Graduate Student Award and the prestigious Dr. Page-El Scholarship Award. Email : jcaldw3@uic.edu    Telephone : 312-996-7988 Mailing Address

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Arthur J. Dalton, PhD Director, Center for Aging Studies at the New York State Institute for Basic Research in Developmental Disabilities Arthur J. Dalton, is the director of the Center for Aging Studies at the New York State Institute for Basic Research in Developmental Disabilities (IBR/DD) on Staten Island, New York (USA). He is a past-President of the Alzheimer Society of Canada and has served several years on the board of directors for the National Down Syndrome Congress in the United States. For the past 15 years, he has been the director for the Center for Aging Studies and Health of the Aging Processes Laboratory at IBR/DD. He has been involved in research on Alzheimer's disease for more than 25 years, focusing on the connection with Down syndrome, the development of behavioral and biological markers and treatment methods. Dr. Dalton is the author of numerous journal articles and book chapters and the co-editor of a seminal text on aging, dementia and intellectual disabilities. He is currently the coordinator of a U.S. National Institute on Health-funded international, multi-center double-blind placebo controlled 3-year trial of Vitamin E that involves some 400 adults with Down syndrome, age 50 and older, in about 10 countries. Email : daltonaj@aol.com    Telephone : 718-494-5309 (New York)    Fax : 718-494-0736 (New York)

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Philip W. Davidson, PhD Professor of Pediatrics and Psychiatry, the University of Rochester School of Medicine, Director of the Strong Center for Developmental Disabilities Dr. Davidson's research includes neurotoxicology and DD, aging, health, mental health, and I/DD. Email : Phil_Davidson@urmc.rochester.edu    Telephone : 585-275-6626 (New York)    Fax : 585-275-3366 (New York)

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Kate DeHaven Project Coordinator for PCAD 3 Project Kate worked in higher education administration at Harvard University and in case management for children and adults with disabilities. She is in the MSW Program at the University of Maine. Email : kate_dehaven@umit.maine.edu    Telephone : 1-207-949-6211 (Maine)    Fax : 1-207-581-4490 (Maine)

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Alan Factor, PhD Associate Director for Training and Dissemination, A/ddvantage Newsletter Editor He is a Research Assistant Professor at DHD, UIC. He is on the Leadership Council of the Aging, Disability and Rehabilitation Network of the American Society on Aging and has chaired the Developmental Disabilities Special Interest Group of the Gerontological Society of America. Email : Afactor@uic.edu    Telephone : 312-413-1510 Mailing Address

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Glenn Fujiura, PhD Director, Institute on Disability and Human Development Associate Professor, DHD, UIC Director of the University Center for Excellence in Disabilities Dr. Fujiura is a leading scholar on the demography of disability, family policy, and the surveillance of disability and has published extensively in these areas. Dr. Fujiura's research has focused on the fiscal structure and demography of the disability service system, on family policy, evaluation of long-term care services, poverty and disability, ethnic and racial issues in disability, and on the statistical surveillance of disability. He served as Chair of the U.S. Administration on Developmental Disabilities Commissioner's Multicultural Advisory Committee, was a 1999 recipient of the National Rehabilitation Association's Switzer Scholar award, and was appointed to the President's Committee on Mental Retardation by President Clinton in 2000. Email : Gfujiura@uic.edu    Telephone : 312-413-1977 Mailing Address

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Charlene Gonzalez Secretary Charlene B. Gonzalez is secretary of the Aging Studies Program which includes the RRTCADD. She cares for the needs of staff and advocate advisors alike; often serving as a liaison between the University, staff, advisors, and program guests. Email : Speedyg@uic.edu    Telephone : 312-413-1520 Mailing Address

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Tamar Heller, PhD Director (RRTCADD); Department Head, Department of Disability and Human Development (DHD), University of Illinois at Chicago (UIC) Dr. Heller is Professor and Head of DHD, UIC as well as Director of the Advanced Training for Disability and Rehabilitation Scholars program and Co-Director of the University Center of Excellence in Developmental Disabilities in Illinois. Dr. Heller authored over 100 publications, including 2 books and 4 edited journal issues, and presented over 150 papers at conferences on aging and I/DD. She served on the boards of the American Association on Mental Retardation (AAMR) and the European Course on Mental Retardation and is past president of AAMR's Gerontology Division. Email : Theller@uic.edu    Telephone : 312-413-1647 Mailing Address

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Kueifang (Kelly) Hsieh, PhD Assistant Director, Evaluation and Data Coordinator She received her PhD in Public Health and received the Academy on Mental Retardation dissertation award. She has published in the areas of health and family support for persons aging with I/DD. Email : Hsieh@uic.edu    Telephone : 312-413-1530 Mailing Address

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Matthew P. Janicki, PhD Associate Director for Technical Assistance Matthew P. Janicki, is research associate professor of human development at the Institute of Disability and Human Development at the University of Illinois at Chicago, and serves as director for technical assistance for the Rehabilitation Research and Training Center in Aging with Mental Retardation at the University. Formerly, he was director for aging and special populations for the New York State Office of Mental Retardation and Developmental Disabilities. Dr. Janicki was a Joseph P. Kennedy, Jr. Foundation's Public Policy Leadership Fellow, spending a sabbatical year at the National Institute on Aging and the United States Senate. He is the author/editor of numerous books and articles in the area of aging, dementia, public policy, and rehabilitation with regard to people with intellectual and developmental disabilities and has lectured and provided training in aging and intellectual disabilities around the world. Dr. Janicki served as the chair of the United States International Council on Mental Retardation and Developmental Disabilities and is the chair of the Aging Special Interest Research Group as well as an officer of the International Association for the Scientific Study of Intellectual Disabilities (IASSID). Email : janickimp@aol.com    Telephone : 207 236 2715 (Maine)     Fax : 207 236 8070 (Maine)

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John Kramer Research Assistant John Kramer is working on his PhD in disability and human development with an interest in families, sibling relationships, disability, and how the sibling relationships change over the lifecycle. He is working on the RRTC's family financed housing study as well as serving as treasurer on the Applied Heath Sciences student council. Email : jkrame3@uic.edu    Telephone : 312-413-1860 Mailing Address

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Beth Marks, PhD, RN Associate Director for Research She is a Research Assistant Professor at DHD, UIC. She has published in the area of public health nursing, primary health care, and I/DD. She co-edited the June 2003 special issue on I/DD in Nursing Clinics of North America. Email : bmarks1@uic.edu    Telephone : 312-413-4097 Mailing Address

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Tia Nelis Self-Advocacy Specialist She is a former president of Self-Advocates Becoming Empowered (SABE), founder and president of People First in Illinois, and has received numerous national self-advocacy awards. Email : Tnelis1@uic.edu    Telephone : 312-413-1284 Mailing Address

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Jenny C. Overeynder, ACSW Associate Director for Community Education, Strong Center for DD, University of Rochester School of Medicine Adjunct Instructor and Doctoral candidate at the School for Social Welfare, University at Albany Email : overbean@nycap.rr.com    Telephone : 585-275-7006(New York)

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Violet Rutkowski-Kmitta, MPH Research Data Analyst Research Data Analyst, DHD, UIC Email : violetr@uic.edu    Telephone : 312-996-8849 Mailing Address

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Kathryn Pekala Service, MS, RNC/NP, CDDN Nurse Practitioner, Massachusetts Department for Mental Retardation She is a founding board member of the Developmental Disabilities Nurses Association and oversees community care for people with DD for the Massachusetts Department of Mental Retardation. Email : Kathy.Service@dmr.state.ma.us    Telephone : -    Fax : 413-584-0611 (Massachusetts)

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Jasmina Sisirak, MPH Project Coordinator, Research Specialist She is a Project Coordinator for the Health Promotion Project and a health educator for the physical activity and health education classes for persons with I/DD and their caregivers. Email : jsisir1@uic.edu    Telephone : 312-996-3982 Mailing Address

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Kiyoshi Yamaki, PhD Senoir Research Specialist Project Coordinator of State Implementation Project of Health and Disability He is an experienced analyst of national data sets on health status, economic status, and general demography. Mr. Yamaki earned his master's degree in Rehabilitation Counseling at Springfield College, MA. He is the first Japanese national licensed as a Certified Rehabilitation Counselor (CRC) in the U.S. Prior to coming to the United Sates, Dr. Yamaki was a vocational counselor in Japan and has a degree in Comparative Culture, with an emphasis on cultural differences between the U.S. and Asia. He has a doctorate in Public Health with an emphasis on community public health and mental retardation and developmental disabilities. Email : kiyoshiy@uic.edu    Telephone : 312-413-7860 Mailing Address

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Anna Zendell, MSW, Doctoral Student Doctoral Fellow at University at Albany Data Coordinator for the PCAD-3 project The PCAD-3 project is examining how families cope with the progression of dementia in their relatives with Down syndrome. Email : algze@yahoo.com    Telephone : 518-442-5787

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  NATIONAL ADVISORY GROUP OF PROFESSIONALS

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