Wednesday
July 26, 2000 at 1:30
Topic: Advocacy for Children with Special Health
Care Needs
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Session
Speakers
Faye
Eldar, M.Ed., Family Liaison, Quality Community
Managed Care Project: Phase II, located at the
Center
for the
Advancement of Distance Education, School
of Public Health, University
of Illinois at Chicago.
Margaret
Mathes, RN, BSN is a great advocate for
children and a registered nurse with 40 years
of experience working with children and families
in a variety of settings.
Rose
Slaght is the mother of four children,
two of whom are children with special needs.
Rose has advocated for her sons within health
care systems, in school, and in the community.
Session
Resources
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Comeunity
This site describes
the various roles a parent takes on when they
are speaking for their child.http://comeunity.com/premature/
advocacy.html
Association
for Children with a Disability has two
great lists: "How to be Your Own Best Advocate"
and "Tips for Advocating on Behalf of Others."
http://www.acd.org.au/self_advocacy.htm
Children
Now An organization whose goal is to
improve conditions for all children by bringing
about change in government, businesses, and
communities. http://www.childrennow.org/health/index.html
UCPnet
The site of the United Cerebral Palsy
organization provides specific tips on how to
advocate. Check out their public policy information
also. http://www.ucp.org/ucp_generalsub.cfm/
1/8/6602