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Wednesday,
Mayl 23, 2001
Your
Voice Counts !! Faye Eldar, M.Ed., Family Liaison, Quality Community Managed Care Project: Phase II, located at the Center for the Advancement of Distance Education, School of Public Health, University of Illinois at Chicago. Nora Wells, Director of Research Activities, Family Voices, Boston, Massachusetts. Ms. Wells is a parent of a man with special health care needs. Carolyn Brennan, a Massachusetts parent of a child with special health care needs. Session Resources Summary Report on "Your Voice Counts!!": Family Voices-Brandeis University Survey Family Voices is a national, grassroots clearinghouse for information and education concerning the health care of children with special health needs. The organization monitors public and private sector health care changes that affect children and families. The volunteer group has a volunteer Coordinator in every state; 10 Regional Coordinators; and a small staff working in several locations around the country. Family Voices works in public and private hospitals, public health programs, in state capitals, in Washington, DC, serving on boards and task forces, working in partnership with health professionals and policymakers, bringing the family perspective to policy discussions and decisions. There are almost 20,000 Family Voices members - families of children with special health needs and friends and professionals who know and love our children. The Heller School at Brandeis University The Heller Graduate School at Brandeis University hosts six social policy research centers. SLAITS: State and Local Area Integrated Telephone Survey. SLAITS is the acronym for State and Local Area Integrated Telephone Survey and offers a way of collecting important health care data at State and local levels. This new data collection tool was developed by the National Center for Health StatisticsNCHS) of the Centers for Disease Control and Prevention (CDC) to supplement current national data collection strategies by providing in-depth State and local area data to meet various program and policy needs in an ever-changing health care system. Learn more about SLAITS by listening to the webcast, "Using a New National Survey to Assess State-Specific Prevalence and Impact of Children with Special Health Care Needs" NCQA: National Committee on Quality Assurance. NCQA is an independent, non-profit organization whose mission is to evaluate and report on the quality of the nation’s managed care organizations. Let us know what you think of the webcast session, as well as your suggestions for future shows, by sending us a message at kmco@uic.edu.
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